Support Torran's Battle with Hereditary AngioEdema

Hi My name is Taylor I am the mother of Torran who is only 5 years old. Torran is a fun and lovable kid who deals with developmental delay and autistic behaviors. Recently Torran has been battling with a rare case of Hereditary AngioEdema mostly found in older adults and not kids. This is a life threatening gene that causes his mouth and tongue to swell up at anytime. Torran is rushed to the hospital about 3 times a month for this condition if we can’t manage it at home. Medicaid has denied purchasing anymore of this medication due to him not being 18years or older . Torran is under direct care and supervision of this medication by 2 allergist doctors and resident doctors for his treatment. It took a month just to get this medication approved from Europe who is only known to make this medication. Icatibant is the only drug that is semi safe enough for his age to use and try to treat his condition that helps cut his reaction time in half to help reduce the swelling when he is triggered. A main trigger for his condition is emotional stress which is hard to manage as he is only 5 years old. Torran requires 3 syringes a month. Icatibant cost roughly around $1,336 per syringe depending on pharmacies. The other brand called Firazyr cost about $11,307 for a 3 syringe supply of 10mg/ml which I can stretch and make it last him two months at a time. Out of pocket for Torran medicine alone without other medical needs will cost me $67,842 a year. I have had 3 doctor opinions on his rare condition and this is my only hope left. I really don’t come to social media to ask for help but it’s for my child and I have to do what I can. Anything helps a donation or simple post. I have enough syringes to help me out for two months so far.