Support Tori's Fight Against Stevens-Johnson Syndrome

Tori’s ICU battle from Stevens-Johnson needs funds for surgeries, meds, and lodging

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Support Tori's Fight Against Stevens-Johnson Syndrome

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My name is Therran, and I am fortunate enough to have Kerry to provide immense love and care to my daughter for the last three years, as well as several other children and friends throughout her lifetime. Kerry is one of the best people I know- providing endless love, support, and kindness to everyone she knows. There are not enough words to fully describe the impact she has made to so many in our community over the years.

For those that know Kerry, they know her amazing daughter. Victoria Allen, Tori, is currently in the ICU at Mass General in Boston for a rare, life-threatening skin condition called Steven's-Johnson Syndrome and Toxic Epidermal Necrolysis. This condition was caused by a medication given to her for a simple UTI.

Her body is fighting a battle most of us cannot even comprehend. Stevens-Johnson syndrome and toxic epidermal necrolysis strip away the body’s protective barrier. The pain is described by survivors as unbearable — like severe burns from the inside out.

She has already received two surgeries to help repair damaged tissue, as well as save her eyesight, but there is a strong potential for more surgeries in the near future. She is currently sedated and intubated so her body can rest and heal.

Tori is fighting. Her body is fighting. The team at Massachusetts General is fighting for her. And Kerry — in her quiet strength — is fighting too. This is the hardest chapter of their story.

But it is not the end.

We hold onto hope. We hold onto the skill of the doctors, the resilience of Tori’s young body, and the thoughts and prayers of everyone around them.

Because of her condition, Tori is out of work and is accumulating thousands of dollars in medical bills, on top of regular bills that still need to be paid. Her mother Kerry is down in Boston with her, and is having to pay for rooming and lodging while living through this hell. Everything is hour by hour, day by day.

Please consider donating to help Kerry and Tori fight through this long battle, and start down what will be an even longer road to recovery.

Organizer and beneficiary

Therran Frazier
Organizer
Barre, VT
Kerry Desilets
Beneficiary
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