Tom is living with Myasthenia Gravis (MG), a rare autoimmune disease that has been attacking his body for seven years — disrupting the connection between his nerves and muscles, causing weakness that affects his breathing, swallowing, and movement. His life-saving infusions are not fully covered by insurance, and his neurologist has expressed serious concern that he is not improving. Without these infusions, Tom would likely not be alive today. In March 2025, he lost his residence due to illness-related financial hardship and has been relying on friends and family for unstable housing ever since.

Despite all of this, Tom has dedicated himself to helping other rare disease patients — serving as a patient advisor for Amgen, Argenx, Johnson & Johnson, Regeneron, and NORD, drawing on over 30 years of experience in technology and life sciences. He is not asking to be rescued — he is asking for a bridge to remain independent while building a sustainable consulting career in the rare disease space.

Here's how you can help: Donate to help cover Tom's medical expenses and basic living costs while he stabilizes. Share this campaign — the more people who see his story, the greater the chance of reaching someone who can truly help. Connect Tom with paid consulting or advisory opportunities in rare disease, life sciences, or healthcare that can accommodate his physical limitations. Every contribution — whether a donation, a share, or a connection — is a hand extended to a man who has spent his life extending his own.