Support Timur's Heart Transplant Journey

Hi again,

We want to let you know that Timur was released from the Children's Hospital on Wednesday September 25th.

He is doing good. We have a lot's of appointments scheduled, but he is home.

Thank you again for your support and thoughts.

Love, Arina

****************************

Hi everyone,

On Monday, September 9th, 2024 we were informed of an organ offer and ... Timur underwent his Heart Transplant Surgery the early morning, 09/10/2024.

It was a successful operation and now we are on a long road to recovery.

We want to Thank all of you who have supported us in this journey.

Thank you to the Children Hospital team of doctors, nurses and personnel who are always available to support us.

And a special Thank you to the donor's family for giving our son a chance to live his life.

We will keep you posted on Timur's healing.

With Love and Thanks from the bottom of our hearts,

Arina and family

**************************

Wanted to give you an update on Timur's journey.

On May 30, 2024 we got the call from Children Hospital, Seattle WA that a heart had arrived, match Timur's vitals and it was time for his transplant.

We got so scared and excited at the same time and went to the hospital. He was being prepped for several hours, mentally and physically for what happens next. Unfortunately, after many hours at the hospital he tested positive for Covid. The chance was gone ... ❤️

As of August 12, 2024 Timur was submitted at the Children Hospital. He placed on heard supporing medicine with peripherally inserted central catheter (PICC) that help his heart function as best as can at this time.

We are now waiting on a new heart to come in, and he have to stay at the hospital all the time now.

We all that heart will arrive very soon.

Thank you again to all of your kind thoughts , phone calls, messages and support.

Will keep you posted.

Love,

Arina

*******************************

Hello everyone, I wanted to share a story on

Timur’s journey...He is my stepson…

Several years ago, in 2015 my life decided to take an unexpected turn when I met my future husband. At the same time, I met a very bright and sweet 5-year-old, his son, Timur. Since then, he has become a big part of my life, our life. He is 14 years old now and facing some life challenges.

In 2019 Timur was diagnosed with Heart Failure, restrictive cardiomyopathy, that couldn’t be treated and requires a heart transplant.

We have had a ton of support from our family, my kids Angela and Olivia and from Timur’s sister, his aunt and grandparents.

We recently (on March 4th) lost a grandfather, who was Timur's favorite person and great individual and very loving grandpa.

Thank you to all our friends who are supporting us through this difficult journey. We can't do it without you, your positive thoughts, and prayers.

We are all here to connect. Life is about people. Love, Time, Death. We all want Love, wish for more Time and we fear the Death.

As of March 21, 2024, the lens of life became clearer again, when he was placed on a Heart Transplant waiting list by Seattle Children's Hospital.

Unfortunately, life hits us with unexpected things that we cannot control. He didn’t choose to be sick…and he's just a child.

Right now, we are just waiting, waiting for the heart transplant surgery, and very hopeful that you can support us through this time… It's a big life event that requires lots of time, patience, and financial responsibilities.

We understand that with a donor there is always going to be a grieving family and loved ones, but this person, our son's donor, will be always part of him...as a new heart...and we all will be forever thankful for this gift. We just hope that this gift will arrive soon...

Timur is attending 8th grade in school right now. He decided to become a pharmacist. He is hoping for a long life and educational journey.

I will update our story as things continue …so just check in with us as often as you can. And thank you for your donations.

We wish all of you the best in your LIFE JOURNEY!

Love,

Arina