Support Tiara's Battle

Tiara Silva is the most beautiful, strong, and amazing young lady I have ever met.  She is selfless, a giver to a fault, a die hard team mate, a loving sister and a doting daughter.  She lights up any and every room she enters, embracing every heart she meets as though they belonged to her forever.

Tiara was in a sporting accident while playing in a softball game in 2017.   She was hit in the temple with a rogue ball while practicing her pitch on the side lines.  This has caused her to endure  test after test, only to come up with a diagnosis of POTS.  Not sure what that is?  Your not alone, Drs are not all that sure either.  However in her case it had shown itself in symptoms of:
Seizures, sever fatigue, numbness of entire left side of her body, stomach pain, vomiting, loss of ability to swallow...  Which will inevitably lead to feeding tubes being placed.

Her quality of life has been something no one should have to go thru, let alone a young lady of 17.  When all she should worry about is seeing her friends at school and what dress to wear at the next dance...  She is rather consumed with the daunting tasks of just living, just getting out of bed has been quite the battle in recent months.  

In her young life she has had to relearn how to walk, work her limbs, as the left side of her body is completely without function.  It is not only numb, but, now we are encountering more serious symptoms.  Organs slowly working less and less, muscle atrophy, inability to eat or drink due to her throat automatically rejecting anything she swallows, micro-strokes, cranial pressure that leads to passing out and loss of consciousness regularly... Then, there is the emotional and mental toll, going from a fun loving, active kid, to a young lady trying not to give up hope for a future.

She misses softball, she misses school and friends, she misses being able to do everything she used to do that now her body won't allow.  She misses being able to look open mindedly at potential future endeavors, adventures, and goals.  As now, her future goals have been put on hold and transformed into simple daily tasks we all take for granted and even complain about.  Though you would hardly know any of this, as she never complains, never wants to accept help, and is more concerned about how her disabilities affect those around her rather than herself.

BUT!!!  While her former doctors began to ignore and generalize her worsening symptoms;  with the help of a new neurologist, new tests, SO MANY new doctors, and now a new diagnosis of Moyamoya disease (a rare disease that affects only 1 out of over a million people in the US)...  There is no cure, but, a hope for some relief.  The new doctors are going to do a Cerebral Revascularization (brain surgery), in hopes it will  reduce if not eliminate any further symptoms.  While yes, her current symptoms will remain, without the surgery she is looking at the almost guarantee of a sever stroke by her early 20's, closing all doors to a future that even slightly resembles the life she deserves.

They need to go into her brain and redirect blood flow diminished by the scar tissue that was caused by the accident.  Hoping to restore and maintain blood flow to her right side of her brain, and that maybe it will give her a chance to live a bit more rather than just survive.  All while knowing it won't even be a permanent fix, as more surgeries will inevitably come to be.

We are asking for help... Help for a young lady that would give and do anything she could for anyone whom she thought needed it. While surrounded by family that loves her,  we need a bit more help than we can offer.  The bills are piling up, insurance is starting to find loop holes, and she needs constant care and a constant watchful eye as she passes out regularly.  If you are able, anything you do would move mountains for her family, and the appreciation and gratitude for helping us over these hurdles would be never ending.