Support Thomas's Battle with Lance Adams Syndrome

Hi Everyone!

My husband, Thomas, was diagnosed with LAS (Lance Adams Syndrome) in October 2024. This happened after a successful resuscitation from a cardiac arrest. He was in and out of the hospital and the rehab hospital until December 2024. The rehab hospital dismissed him when he wasn't making progress in walking and other functional movements due to his LAS.

We have been home for about 13 weeks, and he still has lots of myoclonic seizures throughout the day, making progress difficult in walking, eating, and toileting. He is currently on Fycompa and Keppra medication. He has seen a neurologist at the Cleveland Clinic via Telehealth, and we still don't have answers. We are trying to find something that will make his myoclonic jerks cease or lessen so he can walk, eat, toilet, and get back to daily living.

I am his wife, and he is retired on limited income, and I am now back to work since my FMLA ran out. Since he is not independent, we had to hire home care providers to take care of him during the day so I can go back to work.

We are looking for help with expenses on his medical equipment, doctor visits, therapies, and home care providers expenses.

Not much is known about Lance Adams Syndrome, so we don't know what the future holds. We just know we need support to provide for his current needs.

Please help as this GoFundMe supports my husband and LAS (Lance Adams Syndrome) research. Thank you! ❤