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Support the Teall Family with Aiden's recovery

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On April 8th Aiden (11yr) was admitted to the hospital. He is now in the ICU fighting for his life. The past week and a half has been brutal for the Teall family as they are navigating C-diff along with a collapsed lung. Kevin has had to miss a ton of work and this is obviously an additional stress. I will link Dominique's posts so you can read everything that has been going on for them.

This money will help Kevin be able to stay at the hospital with Dominique so they can both support Aiden and each other during this difficult time. It will also go towards the care of the three children they have at home, and any monthly or medical bills they need help covering.

From Dominique (4/15)
"This will be word vomit. I'm so tired and broken right now. It's vulnerable and hard to recap. This doesn't touch on how hard it's been here but it's been such a whirlwind and taken so much work every second of everyday to just stay afloat but it feels like we're are drowning.
Aiden has always had such a strong village through so many of you for support and I've missed so many people to update so I figured this would be easiest.
Bear with me.
Things have been brutal. It's hard to update because I feel like it's been one long blur of a week on a roller coaster from Hell and bad things just keep happening.
We brought Aiden in for not tolerating his feeds and as the day went on we noticed darker colored urine. Nothing crazy but it worried me. Our gi team said we needed to get checked out and we drove to Nationwide. We noticed some swelling too but no crazy swelling. Just puffiness that made us uncomfortable.
It was a long night in the ER the swelling got worse and worse to the point they could not get blood access on him. His shiny was shiny and tight and his face looked so different.
They ended up having to do finger sticks for every blood draw and a lot of them couldn't even be used.
After results came back he had low sodium, extremely low albumin and high bilirubin and we were admitted.
His electrolytes were crazy out of whack.
I can't keep my days straight but we've had CT scans, ultrasounds and x-rays. They have given him countless infusions of albumin, potassium/phosphorus and vitamin k.
There isn't a clear sign of why his liver is doing this. They've consulted liver doctors and everyone's general concensus was an infection or virus that attacked his liver. Maybe mono or CMV.
Getting blood on Aiden has been an actual nightmare. His fingers are bruised from all the finger sticks and milking his fingers dry. Holding him down during them has been heartbreaking. IV team has had to be called for all his sticks and today the IV guy said "Aiden you're making me want to call in IV team and I am IV team!".
So we worked to help correct his imbalances and get him back on a diluted formula.
He was stable Wednesday and Kevin headed back to Dayton so he could get back to work and be with kids.
That night at midnight the nurse came into let me know he tested positive for c diff. Our short gut, no colon, struggles to gain weight child has c diff. I hace had a phobia of Aiden getting c diff his entire life. I absolutely panicked that he tested positive and we just sent Kevin home and we've been changing huge blow out poop diapers here especially after a contrast bolus via his gtube. I was terrified he'd give it to kids and Kevin spent that entire night bleaching everything in our house, bleaching laundry and throwing out high contact laundry that can't be bleached. I asked for bleach and started bleaching everything in his room and every item we have here. Then he started vancomycin.
Thursday Aiden started getting very upset, inconsolable for almost 12 hours straight except for brief periods of distraction. Kevin had to come back and with his mom here between the three of us and his team we couldn't figure it out and best guess was bad IVs....but he was also acting up respiratory wise which everyone thought would settle.
It did not.
Aiden's respiratory crashed the next morning. So many people came rushing into his room. They worked to get an IV while he wailed in pain while everyone worked on him.
We eventually found out that in being here he developed lung atelectasis (collapsed lungs).
We slowly worked our way into helping him with this secondary issue.
Last night Aiden was himself for the first time in over a week. Playing with his stuffed toy, doing his "cardio zumba" moves all night long. His jaundice started to go away, all swelling was gone, we were so so so happy. Yesterday's labs looked better and trending better.
Kevin was set to head back tonight.
At 7am I noticed a bizarre rash on Aiden's right leg that had a bad IV that looked like phlebitis.
He needed labs and it took IV team am hour to get a line. I held him screaming for an hour desperately trying to console him. Telling him that even though he can't tell us we hear him and know it hurts and how brave he is being. How strong he is and how sorry I am. Telling him how much I love him and how I could only dream of being as strong as he is.
They ordered blood cultures, blood panels, viral tests.
This morning at 8am Aiden had a Voltara treatment for his lungs (10 min masked forced air treatment) and his lungs sounded better. We were so excited.
By 1pm they were junk again.
Test came back showing he was very high risk for sepsis and all the labs that were good yesterday tanked. His bilirubin shot up, liver enzymes, CRP, procalcitonin high, creatine, and more all bad.
I lost it.
I haven't been eating or sleeping. I was so so so damn happy he made so much improvement. To have such improvement and then to plummet was the final straw for me mentally.
The doctor told me I had to go eat, drink a glass of water and get fresh air.
I tried but walking down the halls of a hospital my face and neck had welts all over from anxiety and I just wanted to hide and be alone.
I went down to the family room here security let me in after hours so I could be alone and I got out all the crying I couldn't do in Aiden's room. I don't want to scare him. Aiden was out all day. Went from playful to just gone.
We got his viral panel back and he's positive for rhinovirus. Common cold no big deal right? Nothing is common for Aiden. This will set back all of his recovery and open him up for even more complications. And nothing can be done to speed up the process it has to run its course.
Plus Kevin and I also have severe sore throats now chills and fevers, cough, congestion, bad headaches and really bad body aches.
It is such a hard position because Kevin has to go back and get back to kids and work but Kevin would be bringing back this illness.
Sleeping in the chair by his bed was already killing my back, these body aches on top of it hurt so bad.
His IV he just got yesterday failed and he needs a new one and IV team has been called.
I miss the other 3 kids so much it physically hurts. My parents have been taking care of them, our animals and our basement that decided to flood and fixed our pump that stopped working. The kids are being so tough but this is really hard on them.
Kevin is the best dad in the world. The only times Aiden has been able to be consoled at times is in his arms in a position that wrecks havoc on Kevin's back and arms and he's held him for countless hours while wincing in pain to comfort him while battling a migraine from all of this stress. Kevin does everything in his power to protect and comfort Aiden and this has hurt him deeply. The helpless feeling of not being able to do anything but support Aiden through all this pain has been heartbreaking. Today was the day that cracked Kevin and its breaking my heart. And it kills him to leave him and just wait for updates and be here to help.
We are trying so hard and it just feels like it's never enough and it's impossible with both of us here and he has to leave to go back.
I know I'm forgetting things but my brain feels like it's not working right I'm just too tired and too stressed but wanted to update.
We need all the prayers and love. We can't take anything else happening. We need him to be able to just get through this with no more set backs. Pray that it is the c diff that caused his liver to freak out and it will resolve and not be chronic. Pray this cold doesn't set him back anymore than it has and his lungs continue to improve.
We are so thankful for his team here. They are phenomenal and giving him the very best care.
He's our hero. He's the best kid. So sweet, funny, innocent, strong and resilient. He doesn't deserve this. He's just a kid and he already faces so many challenges just living day to day and takes them in stride. I need the universe to let up on him and give him a break so he can just be a kid. We love him so much
The photo of him smiling while I did his lung percussion was Saturday and we were so hopeful and then him in bed was within 24 hours back sliding."






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    Organizer

    Kayla Leber
    Organizer
    Lebanon, OH

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