Help support people like me, living with endometriosis

Hi, I'm Deanna — and I’m sharing something deeply personal in the hope that it helps others.

I’ve lived with endometriosis for as long as I can remember. It’s a condition that affects 1 in 9 women and those assigned female at birth, yet it often goes undiagnosed for years, and even when it is, treatment options are limited and life-changing.

I had my first diagnosis at 28. A four-hour surgery uncovered 37 lesions and cysts. My internal organs had fused together — they had to be carefully separated before the endo could even be removed.

Two years later, it came back. Another surgery. And then another.

Three surgeries, countless ER visits, tens of thousands of dollars, and more medications, scans, and specialist appointments than I can count.

I tried everything — diets, acupuncture, Traditional Chinese Medicine, lifestyle changes — anything that offered even a sliver of relief. And still, the pain persisted. I pushed through, smiling, working, living, surviving.

Then — a miracle. I fell pregnant naturally.

Despite being told that children might never be possible for me, I gave birth to the most beautiful, healthy little girl. I thought I had finally turned a corner.

But just two weeks later, I was back in emergency.

The pain returned worse than ever. The myth that pregnancy "cures" endo was just that — a myth. In the two years since my daughter was born, I’ve been rushed to hospital five times, undergone two more general anesthetics, and tried every remaining non-invasive option.

Now, I’m facing the final option: a full hysterectomy.

For many with Stage 4 endometriosis, this is the end of the line. It’s a heartbreaking decision, but one made with love — for my daughter, my family, and myself.

I’m raising funds for Endometriosis Australia to support their vital work — advocating for awareness, investing in research, and pushing for earlier diagnoses and better treatments. Too many people suffer in silence or are dismissed for years before receiving help. That needs to change.

If you or someone you love has experienced endo, you’ll know how cruel and consuming it can be. If you don’t, I hope this gives you a glimpse into what so many of us endure — and why your support matters so much.

Please consider donating. Every dollar brings us closer to answers, to hope, and to a future where no one has to live in pain without understanding why.

Thank you for reading, and for helping me turn my pain into purpose

– Deanna