Support Tara's Journey- Rare Blood Cancer and Tendon Disease
Spende geschützt
I am here to support a dear and passionate friend who, over the years, has inspired and encouraged me, helping me see the positivity and light that shines in all of us, even during the most challenging times.
Tara is battling two rare and debilitating chronic conditions: Polycythemia Vera, a chronic blood cancer, and Systemic Tendon Disease, which has already required eight surgeries since 2019, with more expected this year. She has endured countless medical appointments, emergency room visits, diagnostic testing, phlebotomies, and is seeking answers through Stanford's Undiagnosed Diseases Network.
The physical, emotional, and financial toll of this battle has left Tara unable to work, struggling to cover even basic necessities, and at risk of losing her home. She urgently needs support to face the financial challenges of her journey. Your donation can bring hope and stability to Tara, who has continued to spread positivity in the world despite facing life-changing circumstances beyond her control.
This campaign not only supports Tara in her journey, but also sheds light on the financial challenges faced by those living with rare and chronic illnesses.
A study analyzing GoFundMe data from 2012 to 2022 found that out of nearly 2.3 million campaigns, 21.3% were for personal medical expenses. This highlights the severe gaps in a system that often leaves many people in desperate situations. While support programs like Social Security Disability exist, their lengthy processes and strict criteria leave many without timely assistance.
Tara is an advocate for university-led research to uncover and identify rare and undiagnosed diseases, and in the future, she plans to establish a foundation dedicated to helping others with similar conditions. Your donation is not just immediate support for Tara but also an investment in a better future for many.
How You Can Help:
Donate: Please contribute what you can. Tara’s immediate needs include financial security to cover housing, food, transportation, insurance, medications, testing and research, surgeries, and essential post-surgery rehabilitation programs. Tara faces multiple tendon surgeries this year, and she is uncertain of what might require intervention next for her cancer and systemic tendon disease.
Leverage Your Network: Share this page and links with your network on social media and email by clicking the share button. Use any avenues you have to make this campaign go viral.
Pick Up Your Phone: Do not rely on social media and emails alone. Call your friends, family and your community. Talk about Tara’s story and why it’s important to YOU.
With many thanks and gratitude,
LeLe Del Fabbro
Links to Tara's Journey and Updates:
Tara's You Tube - Living with Rare
Tara's Instagram
Links to Foundations Tara Supports:
Center for Undiagnosed Diseases Stanford University
National Organization for Rare Disorders
MPN Research Foundation
Organisator und Spendenbegünstigter
Lele Del Fabbro
Organisator
San Luis Obispo, CA
Tara Barrett
Spendenbegünstigte