Hi, my name is Tanesha Milbourne and I’m the proud mother of Charles Seabrooks Jr — a bright, loving, and resilient 5-year-old who has been through more than any child should ever have to face.

Charles was born on January 5, 2020. As a baby, he hit all the usual milestones — he said “Mama,” “Dada,” started counting, and even recited some of his ABCs. But around eight months, everything began to change. His speech regressed, and he stopped talking, only pointing and crying to express himself. At the same time, he developed severe skin issues — painful, open wounds in the folds of his arms and behind his knees. We first believed it was atopic dermatitis, but that was only the beginning.

At age 3, Charles was officially diagnosed with Autism Spectrum Disorder. While the journey wasn’t easy, he found joy in school, and his vocabulary slowly started to grow. He truly loves learning and being around other kids.

But then, Charles began getting sick — constantly. Ear infections, eye infections, RSV, pneumonia, COVID, rotavirus — you name it. In August 2024, he was hospitalized for a week with unexplained fluid buildup in his knee. It was drained, but his bloodwork revealed alarming abnormalities. His hematologist, Dr. Manini, began testing for something rare — Wiskott-Aldrich Syndrome, a serious genetic disorder that weakens the immune system, causes severe eczema, and leads to dangerously low blood platelet counts.

In January 2025, Charles was officially diagnosed with Wiskott-Aldrich Syndrome, along with his existing autism diagnosis.

Charles condition puts him at risk for life-threatening infections, internal bleeding and extreme complications. He also struggles with an autism related eating disorder. So his diet is very limited.

It’s a daily challenge keeping him nourished and safe so Charles had to be pulled out of school. He now receives antibody infusions every four weeks at the Children’s Hospital of Philadelphia — one of the few places equipped to treat this rare condition.

Then in April, Charles was hospitalized again — this time for a painful infection in his right knee. He underwent two surgeries, five MRIs, and fluid drainage procedures, resulting in a four-week hospital stay. During this time, I had to resign from my job at ChristianaCare, where I didn’t qualify for FMLA. I’ve been Charles’s full-time caregiver ever since.

Now, Charles is preparing for the biggest challenge of his life — a bone marrow transplant scheduled for July 21, 2025. This will require another 4–6 weeks in the hospital, and a long road of recovery afterward, including isolation and intense medical care.

With no income and no outside help, we are struggling to keep up with bills and basic needs.

I’m humbly asking for support to help us:

    •    Keep a stable home for Charles to recover in

    •    Cover transportation to and from the hospital

    •    Pay for essential bills while I care for him full-time

    •    Provide Charles with the daily care, supplies, and comfort he needs

Charles is the sweetest, smartest little boy — full of love, compassion, curiosity, and joy. Despite everything, he doesn’t even realize how sick he is. He just wants to go to school, play at the park no matter the weather lol and visit Chuck E. Cheese with friends.

I pray every day that this transplant gives him a second chance — a chance at a childhood full of health, lots of love, friendships, and fun!

All though there is no cure for Wiskott-Aldrich Syndrome…this bone marrow transplant could be life-saving and game changing that’ll give him the closest thing to a normal life.

If you can give, no matter how small, please know it will make a real difference. And if you can’t donate, sharing this page and sending your prayers means the world.

Thank you for helping Charles fight this battle.

With love,

Charles Jr. & family ❤️