Help Suzie Save Her Tiny Home — and HEAL in 2026
Hi, I’m Suzie. I’m 66 years old, and I’ve spent the last decade fighting not just for my health — but for my life.
In 2014, my health began to rapidly decline. By 2016, I was in a wheelchair after my spine collapsed, and in early 2018, doctors told my family to take me home and get my affairs in order. I was losing mobility, weight, and hope. My insurance company pulled coverage for all services when I refused to go into a nursing home, leaving me to pay out-of-pocket for everything — from home care to physical therapy. I cashed out my 401K and fought back.
Eventually, I found a doctor who believed me and helped uncover the root cause: a rare condition called Tumor-Induced Osteomalacia, along with Hypophosphatemia. This diagnosis saved my life. In 2020 through my research I uncovered an antibody treatment called Crysvita. It was only offered to patients diagnosed with XLink . However in July 2020 FDA fast tracked it to be given to TIO patients. After two initial antibody treatments at Duke, I now receive ongoing infusions at IVX Health in Brandon, FL.
Throughout this battle, one vision kept me going: a tiny home of my own — safe, beautiful, and filled with healing. In 2020, I made that dream a reality. I moved into my Tiny Purple Butterfly Dreamer in Florida, determined to rebuild my life and one day create a Tiny Healing communities to help others.
But today, I’m at risk of losing everything.
This is a 2-folded request:
One:
To fund my tiny home, I had to take out a high-interest loan of $40,000.00 interest only at a rate of 14% for 23 years. and I have $645/month lot rent and utilities. Due to my income and low credit score I am unable to refinance my loan with a different bank.
That’s why I’m asking for your help.
Your donation will help pay off this oppressive loan and allow me to stabilize my life, remain in my tiny home, and continue pursuing my dream of healing and helping others.
2
Besides Tumor Induced Osteomalcia/ Hypophosphatemia
I also live with Neurofibromatosis Type 1 (NF1), a progressive genetic disorder that requires annual scans. I’m currently being monitored for Gastrointestinal Stromal Tumors (GIST) every 4 months which is another reason why stability is essential to my ongoing health journey.
I have linked arms with a wonderful friend and mentor Mandi Rose. She is a holistic, health, coach, root cause practitioner, fitness, nutrition, specialist, EDS level III certified.
I recently had a root cause screening with her on a machine that comes out of Germany, electric dermal screening. It uses advanced software and technology that can detect and balances in the body..
My report was quite lengthy. We are beginning a protocol of a adjusted lifestyle, diet, and supplement change.
Because this is an alternative Healthcare, it is not covered by insurance.
From starting this go fund me, I do have funds available to begin the first month of treatment.
Every dollar brings me closer to peace of mind and the chance to keep inspiring others with what I’ve survived. Please share, donate if you can, and help me protect the dream that saved my life.
With love and gratitude,
Suzie