Support Super Sean's Fight Against Brain Tumor

Morgan Carson is organizing this fundraiser on behalf of Anthony Guidotti.

Donation protected

12/3/24 update

Dad here. On Sunday, December 1, our precious firstborn son Sean Anthony Guidotti crossed over into eternal paradise in the comfortable presence of his loving mother, Vannessa.

There can be no words for the torrent of emotions that we are all feeling right now. But at the same time, I feel relieved knowing that this absolute angel of a child is no longer burdened by the evils of this world. Sean fought the devil valiantly until his very last breath, and he left this world fighting like the warrior he was.

Sean was the best son a parent could ever ask for. He touched so many lives and proved that quality is always better than quantity. His six jam-packed years changed countless lives and the world as we know it.

In January, we are going to do exactly as Super Sean would have wanted, and we are going to celebrate the life of this amazing, beautiful human being that we had the pleasure of calling our son. We will post details as the time comes closer.

I am going to create another post with links to Sean's Go Fund Me and a couple of charities to donate to in lieu of flowers.

Thank you all for your support during this tough time.

Hi! My friends call me Super Sean and I just turned 6️⃣! I live in North GA with my mama & daddy, two brothers and two pitbulls. I was diagnosed at three years old with a rare brain tumor called a Craniopharyngioma. What's that, you ask? A Craniopharyngioma is a rare benign tumor that develops near your pituitary gland. This is a slow-growing tumor that can affect your cranial nerves, which are responsible for vision, and your endocrine system, which is responsible for the hormonal function of your body! The main treatments for Craniopharyngiomas are surgery and radiation therapy. Don't be fooled by this being a slow-growing tumor! My tumor has a habit of blowing bubbles in my brain (cysts) and those bubbles can cause all sorts of problems! They put a lot of pressure on a really important part of my brain, and have caused many issues for me, including my development of Hypothyroidism and Diabetes Insipidus. They've even damaged one of my optic nerves so much that I can't see out of one eye!

Over the last 2.5 years, I've had too many hospital visits to count, nearly 12 surgeries, have undergone 6 weeks of radiation, have gone completely blind in one eye, have spent many weeks in the hospital, and so much more! Even through all of this, I am a fighter and my family is fighting alongside with me!

We are currently entering our 5th week in-patient at CHOA fighting a lot of inflammation from radiation I had earlier this year as well as rebuilding my strength from being nearly sedentary due to lethargy for over a month now. My family and I thought this as good a time as any to share what we used to call "Sean's story" but has very clearly turned into my testimony. ✝️

My mom or dad are always with me, never leaving my side. My Grammy even came all the way from Pennsylvania (again!) to take care of my 2 brothers so that mom and dad can be with me. She always comes when we need her, even though plane tickets are expensive! My dad works at a really great place not far from my hospital, so he gets to come see me after he is done working everyday! My family visits me often and we even just celebrated my 6th birthday in the family life center at my hospital! My mom decorated my whole room with my favorite TV show, Paw Patrol!

I'm working hard everyday to hit the milestones my extensive medical team has set for me. My mom likes to say that 'it takes a village', and I would really appreciate your prayers, support, and well wishes while I continue working really really hard to get better! Thanks for taking the time to read a little bit about my journey.

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Hi all! My name is Morgan, I am Super Sean's Aunt Momo. Sean has now been fighting this diagnosis since the age of 3, for almost 3 years now. I am organizing this Go Fund Me in hopes that we, as a community, can help this family while they are dealing with this incredibly difficult time. Vannessa and Anthony have 3 children, including Super Sean. Anthony's mother has dropped everything again and again to come from PA at the drop of a hat and take care of the 2 littles so that Anthony can continue working to support his family and Vannessa can be with Super Sean at the hospital. Other Grandparents, Aunts/Uncles, family members, and friends are stepping in to physically help where they can, too! Vannessa and Anthony take turns coming home on the weekends and are working very hard to keep life as normal as possible for their 3 year old and almost 1 year old at home. Please consider helping making this time a little less stressful for them by making a donation to their family. All funds raised will go towards helping Super Sean continue to get the best care available, helping the family continue to navigate this impossibly difficult time by way of medical expenses, travel expenses, food costs, and any of the many other related expenses.

Vannessa (Super Sean's mom) has expressed a great desire to connect with other families dealing with a Craniopharyngioma. Please reach out via the Super Sean page to connect with her, should you feel led to!

https://www.facebook.com/profile.php?id=61564630270317

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Some Educational Information From Super Sean's Facebook page:

More than 90% of people with this tumor are alive five years after diagnosis. That said, these tumors are treated as a chronic condition because treatment doesn’t always cure the conditions the tumors cause. Each year, approximately 2 people per 1 million are diagnosed with one of two types of craniopharyngiomas: adamantinomatous and papillary. They typically present in two age groups: in children aged 5 to 14 and in adults aged 50 to 74. It is a condition that may require life-long medical treatment. About half of all surgically removed tumors come back over time. They cause several medical conditions that remain even after the tumor has been removed. These are typically treated with brain surgery, which can be done either through your nose using a small scope, or through an opening in your head called a craniotomy. The goal of surgery is to remove as much of the tumor as possible while minimizing damage to your pituitary gland, hypothalamus or optic nerves. Even so, some people might need to take hormonal medications afterward. In addition, post-surgery radiation therapy may be recommended, especially if the entire tumor couldn’t be safely removed. Surgery to remove craniopharyngiomas can be very challenging. First, these tumors develop near delicate nerves and your pituitary gland, which are at risk for damage. Second, removing a craniopharyngioma is like pulling a sticky label off an envelope without tearing the envelope. That’s because these tumors tend to cling to your pituitary gland and the nerves that control vision. Some healthcare providers believe surgery to remove these tumors may cause as much damage as the tumors. So, it’s important to understand what the goal of surgery will be ahead of time and what side effects may be expected.