Hi, my name is Sumer and I never imagined I’d be writing something like this.

Recently, I was diagnosed with brain cancer—a very rare and aggressive type of glioma called H3 K27M, a diffuse midline glioma that is wrapped around my brainstem. It’s about the size of an orange.

What’s even more shocking is that this tumor has likely been growing silently for over 15 years, even though this type of cancer is typically fast-growing and most commonly found in children. Most people diagnosed with this only live about two years—but somehow, I’ve beaten the odds so far.

How This All Started

Back in March, I began getting short headaches when I laughed—only lasting about 20 seconds. Over time, the pain got worse, showing up when I bent over or strained in any way. I finally saw a neurologist, had an MRI, and was sent straight to MD Anderson to see a neurosurgeon.

On July 23rd, I had another MRI, and the neurosurgeon believes there’s a safe way to do a biopsy. If confirmed, we’ll move forward with radiation therapy to hopefully slow the tumor’s progression.

There’s currently no cure for this type of tumor—but there is hope. The FDA is meeting soon to potentially approve a new drug called ONC-201, which could slow the tumor’s growth—or even shrink it—and give me more precious time with my family.

How You Can Help

I haven’t been able to work during all of this—between nonstop scans, doctor’s visits, and waiting for insurance to begin in August. My husband Cleon is doing everything he can: working full time, taking care of me, and being an incredible dad to our daughter, Kya.

We’re humbly asking for support to help cover:

    •    Doctor appointments and hospital visits

    •    Upcoming biopsy and radiation treatments

    •    Groceries and basic needs for our family

Even the smallest donation helps, and if you’re unable to give, sharing this page or keeping us in your thoughts means the world.

I’m staying hopeful. I’ve made it this far for a reason—and I plan to keep fighting with everything I’ve got.

Thank you so much for reading, for your kindness, and for standing with us.

With love,

Sumer Neal

My Venmo: Sumer-Snow

Zelle: [phone redacted]