بِسْمِ ٱللّٰهِ ٱلرَّحْمَٰنِ ٱلرَّحِيمِ

Our daughter, Suhayla, was born with Spinal Muscular Atrophy (SMA) Type 1, a rare genetic condition. SMA is a progressive disease that weakens the muscles needed for movement, swallowing, and breathing.

This has been a very difficult test for us, but we know that Allah ﷻ tests those He loves. Despite her many challenges, Suhayla continues her journey with patience and a smile that inspires us every day.

Alhamdulillah, Suhayla received Zolgensma gene therapy, which has given her hope for the future. However, her needs remain significant. Due to frequent hospital admissions for respiratory issues, she is weaker than most children with SMA. Suhayla currently relies on:

    •    A BiPAP machine for breathing support

    •    A suction machine and cough assist to clear her airways

    •    A PEG tube for feeding

Physiotherapy is vital for Suhayla’s progress. It helps her build strength, work towards independence, and improve her quality of life — by the will of Allah. Our long-term goal is to take her abroad for intensive physiotherapy, in shaa Allah, while continuing her regular weekly sessions here in the UK. We are also raising funds to provide her with the essential equipment she needs and to support her ongoing care.

We are deeply grateful for your support, du‘ās, and contributions. In shaa Allah, every act of kindness will be a source of khayr for you and a form of ṣadaqah jāriyah (ongoing charity).

May Allah grant Suhayla an easy recovery, remove her pain, and bless her with strength, comfort, and a better quality of life. Ameen.