Hello on behalf of my daughter Stella Marie I would like to share a little bit about her. Stella is 1 year old and she was recently diagnosed with TBCK syndrome. TBCK syndrome is a very rare genetic condition that affects global developmental delays and intellectual disability. She has a speech delay, vision impairment which may lead to surgery, and hypotonia (low muscle tone). She also experiences staring spells and Gastrointestinal issues. Even though she is a TBCK warrior, she is such a happy and silly baby and we love her dearly.

Any donations would be really appreciated since Stella will be traveling in February to the Children’s hospital in Philadelphia. You donations would help with medical expenses, traveling expenses, and medical equipment.

We are beyond grateful for our new TBCK family.