
Support Stacy's Final Wishes and Memorial
Donation protected
Stacy has come to an end of a very short life. Yes she is 19, mentally she is 13. She has beat the odds since the day she was born. She was born with HOLT-ORAM SYNDROM. It is a TBX5 mutant gene ( for the medical world). She has had 20 heart surgeries, has an artificial mitral valve, and a pacemaker,cardioseal implant.
Unfortunately her time is nearing, she is expected to live less than 2 years now. There is nothing else that can be done, We are experimenting with different drugs now but it mite only buy her a little extra time. Her heart is very weak now, She has little to no energy, her appetite is almost null, she requires oxygen at all times and now uses a wheelchair at times although becoming more frequent due to shortness of breath.
After a long discussion with all her doctors it has been decided to sign a DNR. She has decided to be an organ doner, in her words "" mommy i love you and i don't want another mommy to feel sad or hurt like you do so make sure my kidneys go to a good kid so another mommy doesn't have to feel your pain "" Yes My teenager said those words. She has the biggest heart I have ever seen from this new generation we live in. We believe in god, jesus, and heaven so she knows there's a safe place were she will never feel pain again, no more heartaches, no more bypass, no more surgeries. Although Stacy couldn't do what most kids do, or play sports, go out with friends she never let it get her down, I only wish I was as strong and as Brave as she was. She has put up an amazing fight, defied all odds, and is now very weak and tired and does not want to fight anymore.
- We are trying to raise money to pay for her final expenses, since I could not get a life insurance policy on her, even when she was born no one would cover her. She wants to be cremated, wants a purple urn with black roses on it, I would like a Urn necklace which there should be a picture of on here, so i can carry my baby with me. She is all i have in this world, I have raised her myself since she was born, Her biological father abandoned her at 3 months old, her step dad that raised her from 7 years old till 17 years old wont talk to her and has completely ignored her since i left that abusive relationship. I work 3 jobs, 1 full time, 2 part time just to make ends meat now, the final expense if i can raise enough after her Service, URN, Necklace will be used to pay 1 months rent so i can have a couple weeks off to process and have some therapy to help me, No parent should EVER have to outlive there child. I am a single mother with no other children. The pictures below are thanks to Boston Children's Hospital, who have created an app for parents to see parts of there child's surgery IF THEY WANT, They may be graphic for some. ( sorry pictures interrupted )
Thank you
Organizer

Angela Peace-Bergendahl
Organizer
Lebanon, NH