Support Serenity on her HLH & Chemo Journey

Oh the sad news!!! Our Serenity has been diagnosed with HLH again...

At 6 weeks old Serenity got sick… after several grueling weeks in the hospital, and nearly loosing our sweet baby girl, she was diagnosed with HLH.

HLH (hemophagocytic-lymphocytosis) is a rare genetic disorder. Some of its symptomatic responses are high fevers, cells eating cells, jaundice, swollen spleen and liver, etc…. the simple explanation is a “runaway immune system”.

The only known medical cure is a bone marrow transplant. The treatment involves chemotherapy, high dose steroids, and a bone marrow transplant.

The poor girl was in the hospital most of her first year of life, going thru treatment and, among other serious things, suffered respiratory failure resulting in 4 weeks in a coma, on a breathing machine. It was rough!!

She’s truly miracle! The treatment seemed to be effective and by the age of 3 she didn’t require much medical attention anymore.

She’s been quite developmentally delayed, very possibly as a result of her extensive treatment as a baby.

But, she keeps us laughing with her innocent comical remarks, and amazes us at how much love she assumes and feels by everyone she meets! She’s now 14 years old!

Sadly, on February 15, 2024 she began fevering; 4 days later we heard the sorrowful news that she was being life-flighted to Primary Children’s Hospital, where we were given the horrible news that her HLH has relapsed….

She’s again at the start of another long journey of nauseating chemo, irritable steroids, and most likely a rigorous bone marrow transplant.

We are raising funds for her and her Mom, Angela, to help with living expenses so Serenity can have her mom with her in the hospital and during her treatment in SLC.

The duration of her treatment will be a minimum of 6 months.

We will post updates…