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Support Sayasa’s Fight Against Lupus Nephritis

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Hello,
My name is Dixant Rai, currently residing in Pennsylvania, US. I am raising funds for my cousin Bigyan’s 13-year-old daughter, Sayasa, who is currently in the Pediatric Intensive Care Unit (PICU) in Patan Hospital, Lalitpur, Nepal, fighting a severe case of lupus nephritis (Grade IV).

Currently, her medical team is waiting for her blood pressure to stabilize before proceeding with critical procedures like a kidney biopsy and regular dialysis.

In addition, she urgently needs treatment with 7 doses of intravenous immunoglobulin (IVIG), which costs NRS 90,000 per dose (about USD 675), and Rituximab 500, a medication crucial for controlling her lupus. Each dose of Rituximab costs NRS 50,000 (about $375), and she needs 12 doses in total (6 doses twice over the course of treatment).

The costs for these medications, along with her ongoing PICU care and medications which amount to NRS 23,000 (about USD 175) per day, are overwhelming for her family, and they are unable to begin full treatment until the funds are secured. Any contribution, no matter how small, will go directly toward starting her life-saving treatment and covering her hospital expenses.

Your support will make an enormous difference in giving Sayasa a fighting chance in her battle against this serious illness.

Thank you from the bottom of our hearts for your kindness, generosity, and prayers during this difficult time.

Sincerely,
Dixant Rai


Appeal from Sayasa’s father, Bigyan Rai:

सबैजनालाई हार्दिक अनुरोध छ।
मेरो स्थायी ठेगाना जन्तेढुङ्गा गाउँपालिका वडा नं ५, चिसापानी, खोटाङ, नेपाल हो।
मेरो छोरी सायसा राई विगत १ वर्षदेखि लुपसको कारण मृगौलामा समस्या भई पाटन अस्पतालमा उपचाररत छिन्। हाल सायसाको अवस्था नाजुक रहेको छ। लुपस दीर्घरोग भएकोले जीवनभर उपचार गर्नुपर्ने हुन्छ। यो रोगको उपचार अत्यन्त महँगो भएकाले उपचार गर्न समस्या भइरहेको छ।
यस कठिन समयमा हामीलाई आर्थिक सहयोग गरिदिन हार्दिक अपिल गर्दछु।

Appeal from Sayasa:

म विगत १ वर्षदेखि SLE (Lupus) रोगले ग्रसित छु। SLE को कारणले मेरो दुवै मृगौला चौथो स्तरमा बिग्रिएको छ। हाल म पाटन अस्पतालको PICU मा उपचार गरिरहेको छु।
मेरो बाबा-आमाको आर्थिक अवस्था अति नाजुक छ। अब मेरो उपचार परिवारबाट सम्भव नभएकोले सबै मनकारी महानुभावहरूलाई आर्थिक सहयोग गरिदिन हार्दिक अपिल गर्दछु।

If you are in a country that does not process GoFundMe transactions but would like to donate, below are the details for Bigyan Rai’s (Sayasa’s father) bank account:

Account Holder Name: Bigyan Rai
Bank Name: Agricultural Development Bank
Account Number: 1125204002401013
Account Branch: Chisapani, Khotang
Receivers Phone Number: +977 9841544562
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    Organizer

    Dixant Rai
    Organizer
    Ardmore, PA

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