My name is Jenna, I am Sam's best friend of 20 years, thank you for being here and reading his story.

Sam is a devoted husband to his wife Siân and an amazing Daddy to his nearly two-year-old son Rex.

He has always been a fit, active and healthy person, a go-getter in life, days filled with to do lists, hobbies, and family life, completely dedicated and committed to his work and full of ideas and future plans. Sam has never been one to sit still, always pushing for that next goal, that next deal, that next adventure. Showing passion and heart in everything he cares for, always being kind and fair.

Motor Neurone disease shows no fairness; it pays no mind to adventures and plans.

On the 21st December, after a 5 week stay in Bedford Intensive Care unit, Sam was diagnosed with MND. His journey has been cruel and progressive, MND is always cruel, no doubts there, but for Sam the progress of the disease came on so quick and has progressed so rapidly that he has now lost almost all autonomy for himself.

MND is a cruel and relentless, a fatal disease and right now there is heartbreakingly no cure.

Sam and Siân moved house late September, shortly after, Sam went to the doctors for the first time, he was suffering from pneumonia. After a few weeks of back and forth with the doctors, with tests and screenings, Sam still had no answers and his health was continuing to deteriorate. Heavy chest, fatigue, loss of appetite, unable to cough, sneeze, swallow and strange sensations in the left side of his body. On Friday 21st November, Siân took Sam to the emergency department, his condition was escalating.

Sam walked into the emergency room, but a few hours after admittance he went into respiratory arrest. Sam was revived and put into an induced coma. He spent 7 days in a coma, then 5 weeks in ICU. When Sam was well enough to undergo testing, and after weeks of admittance to the ICU Sam and Siân got the world-shattering diagnosis that Sam has Motor Neurone Disease (MND) at just 38 years old.

How can life just turn on you like that?

Sam didn't know that would be the last time he would pick up his son or tell his wife he loves her. He wasn't given any notice, and he had no idea he was going to lose the ability to breathe, swallow, eat, or speak, it was just taken from him in an instance.

Sam and his family are now navigating the next chapter, getting Sam home with his family so he can live out his final days in the comfort of his own home, surrounded by his loved ones, and where he can see his son every day. Their life will never look the same and the challenges ahead of them are massive but every day he gets to watch his son grow is a day worth fighting for.

Many people have expressed a desire to help but are unsure how. If you can donate, the support will be so gratefully received.

The funds will help take away some stress from Siân feeling like she needs to go back to work to keep a roof over her family's head and food on the table whilst simultaneously knowing she does not have the capacity to actually do her job at the moment and care for their son and organise everything to get Sam home with his family where he belongs.