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Support Roma's Fight Against OMS

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Help Support Marco’s and Daisy's daughter, Roma, in Her Fight Against OMS

We're reaching out with heavy hearts and hopeful spirits to support our friend and colleague, Marco, whose young daughter, Roma, has been diagnosed with a rare neurological disorder called Opsoclonus-Myoclonus Syndrome (OMS). This condition affects just 1 in 10 million children and causes sudden, unpredictable muscle movements, difficulty walking, and severe developmental delays.

Despite the emotional and physical toll, Marco has continued to show up for our team with strength and dedication — now it’s our turn to be there for them.

Roma is currently undergoing intensive treatment, including hospital stays, specialist visits, and therapies that aren’t fully covered by insurance. The financial burden is growing fast, and we’re rallying together to help ease that load so the family can focus on what truly matters — Roma’s healing and care.
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    Organizer and beneficiary

    Mark Turner
    Organizer
    Naperville, IL
    Marco Alvarez
    Beneficiary

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