Support Rhylinn's Fight Against Scleroderma

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Support Rhylinn's Fight Against Scleroderma

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Hello everyone! My name is Angelle Stelly and I have a 13 year old daughter named Rhylinn! If you know me then some of you may already know that she was diagnosed with an auto-immune disease back in May of 2020. It is called scleroderma. The cause is unknown and of course, there is no cure. It is only manageable. That’s what we have been told! There are two kinds of this disease- localized and systemic. Rhylinn has localized which means it has not affected her organs, but has mostly affected her hands- mainly the fingertips. This disease causes her to have tightening of the skin around her hands and fingers, terrible joint pain and she also suffers from Raynaud’s Phenomenon which means she does not get good blood flow to her fingertips and it causes them to turn purple when cold. Since she has no good blood flow, her main problem is the dying flesh on her fingertips. This causes her so much pain that it is unbearable at times.

We may have found something that can help Rhylinn! We are currently looking into something called stem cell treatments which can improve her health and possibly cure her from this disease! It has been well researched and has had exceptional results for people who have the same disease. Cost for the treatment is $12,500 and is not covered by insurance! I want to help Rhylinn in anyway that I can, so any donations are greatly appreciated! We are looking into going over the summer for a course of two treatments that are two months apart! We are more than happy to front the money for our child, but having this will really take a burden off of our family! Thank you so much in advance to anyone who offers prayers, donations and love for my girl!! I just want her to enjoy her youth! ❤️

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Angelle Stelly
Organizer
Arnaudville, LA
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