On February 13th, 2025, my daughter Remi had passed away in her sleep peacefully after almost 7 years on this earth fighting medical issues and overcoming immense obstacles. Her body was finally too tired and I guess it was just time to be with Jesus.

Remi Anne was born April of 2018, and she was the baby of her siblings - Mikaela (14) who was like a mommy to her, Leo (12) who loved to snuggle her and laughed at her silly antics, and Kameron (9) who loved to protect her and help me take care of her through the years. And even though he doesn’t feel worthy of being mentioned, I can’t help but say how blessed and grateful I feel that the man I ended up with who got to be in the last year of her life was the best father figure I could’ve ever hoped for with her. The love, protection, and care my baby received was unmatched.

Remi was born with Down syndrome, congenital heart defects, intestinal defects, and weak lungs. She had over 20 surgeries, many being open heart surgery, in the course of her short life, she faced multiple near death situations with how sick she would get, and she unfortunately spent the majority of her life in and out of hospitals or at her many specialist appointments, but she was immensely loved and fought for. We tried giving her the most normal childhood we could, and no matter what she went through, she always had the biggest smile and happiest personality. She blew doctors away constantly with her resilience and strength, and she defied odds many times, encompassing what it means to be a miracle and an act of God. She truly was a light everywhere she went, and I had the honor to see and feel how many lives she made such a positive impact on.

My 3 other kids, my family (including my fiance), and especially I myself, are really struggling with this indescribable loss. She was everything to us all. So we all need prayers. But we also need all the help we can get to navigate where we go from here, because with how unexpected this was due to how well she had been doing for so long, we didn’t have the finances ready for something like this happening. After emergency personnel did their assessment, due to her medical history and chronic conditions/long list of medications, they saw this was from natural causes and the medical examiner decided not to take her to provide an autopsy. I need to know what happened though so I have closure. So I will have to pay for an autopsy out of pocket. **Edited below. No autopsy now.** On top of that, we need help making her funeral happen and all that comes with that. I can’t believe I’m even saying any of this or having to do this at all. But the amount of support Remi grew over the years, who held me up in our toughest times, has blessed us beyond measure. So I’m reaching out one last time to send her off properly.

Thank you for reading, and thank you for following my girl’s story while loving her through it. Thank you to everyone who’s been there for me and my kids as well. Life will never be the same without our angel.

**Edit**

After speaking with the funeral home and family, we’ve decided not to pursue an autopsy due to the fact that we know this was her medical condition and nothing more. As bad as I want to know what part of her body gave out, I don’t want to prolong laying her precious body to rest. Also not having this done will allow us to have appointments easier to go and visit her up until her funeral. So these funds will help pay for the funeral and everything required for that, and anything left will help us navigate getting back on our feet.