
Support Presley’s Fight Against Pots & PNES
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Hi I'm Presley Ellis. I'm 25 years old. I spend most of my days not sure who I will be when I wake up. I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in 2022. It causes me to faint, not be able to breathe, have tremors, dizziness, lightheaded, weakness, can't regulate tempature, difficulty eating, and some days unable to talk and walk. When I have my episodes, I end up being bed ridden most days. I don't get warning everytime that I'm going to faint so I end up hurting myself frequently. I'm in and out of hospitals and have many specialists I visit. I've become a liability to myself and jobs so I'm unable to work and have my mother as my caregiver. She's an amazing woman and has had to deal with watching her little girl deteriorate, find her strength again, but end up repeating the process. I also suffer with anxiety, severe depression, and ptsd. As of this year (2025), I was hospitalized and found out I have Psychogenic Nonepileptic Seizures (PNES) I consistently have seizures that can be triggered from just about anything. Stress, heat, anxiety, memories, excitement, depression, emotions, you name it. My specialists also have suspicions of having other conditions as well, but we've been unable go continue with our appointments. My family has done everything they can. They've spent time and money on trying to get me help so I can have a full filled life again. But no matter how much they do, they still have lives and children they have to support as well. We've hit a wall recently due to just being behind on our expenses. My mentality on quality of life though has depleted and we desperately want to continue getting me the help and resources I need. If you're able to help in any way at all, we'd appreciate anything. You can donate here or reach out if you want to help out in any other way. We love you all and appreciate everything people have done for us already.
Organizer
Presley Ellis
Organizer
Norman, OK