Support PQM

To our friends and music community, 

It is time we need to share with you the news that our dear friend PQM, has been diagnosed with Motor Neurone Disease (MND).  We would like to ask you show your support in some way to help Quick at this difficult time.

PQM has given so much to our community through his music whether it be his djing, production,  being on the airwaves at Kiss FM, Quick has helped shaped the Melbourne music scene with an incredible energy behind him.  We love Quick, he is a great friend and support to many and now is our time to return this support.

This disease is incredibly tough to deal with, physically, mentally and financially.  Your help will assist with treatment to slow it down assisting with medical and general living expenses. 

Lets help give PQM the best chance at dealing with this....

Please give generously and share to the community.

In addition we will be holding three fundraising events:

1.  October 6th at La Di Da (Melbourne) from 1pm to 8pm for a family friendly fundraiser with kids activities, food and drinks all afternoon. Details to follow.

2.  October 26th at Sub Rosa (Brisbane) - more details to follow...

3. Cairns event - details TBC 

Thanks and love,
Danny

----------------

To all my friends who have noticed I’ve been kind of quiet over the past year or so. In August of 2018 I was diagnosed with Motor Neurone Disease (also known as ALS) so my life has changed dramatically. I haven’t told many people and only just recently informed my family. I kept expecting and hoping things to get better, but sadly they haven’t.

Motor Neurone Disease (MND) is also known as Lou Gehrig’s Disease. It is a progressive neurodegenerative disease that erodes motor neurons - cells in the brain and spinal cord that control muscular function - until it becomes difficult or impossible for a person to walk, talk, speak, swallow and breathe. Stephen Hawking had managed to live a long time with this cruel disease but most affected die within a few years, some within months.

Unfortunately, I am told there is no cure.

My symptoms began in 2017 when I lost the ability to hold a guitar pick and had to cancel a gig. I remember being so upset because that gig was going to be my first ‘unplugged set’ with just me & my Martin guitar. Never did I imagine things would get worse. During that time I also started experiencing very painful debilitating cramps all over my body. They would strike without warning which made living a normal life very challenging. Day-to-day activities were becoming too difficult, even driving to work eventually became too risky. I tried working from home for a few months but ultimately was let go in December 2018.

To the casual observer I might appear completely fine. Although my right hand and arm have lost strength to do the most simple tasks like brushing my teeth, tying my shoes or even putting on deodorant and feeding myself to name a few.  My left arm and hand started showing symptoms six months ago and continues to weaken every few weeks.

I am currently receiving the best care Australia can provide from a team of specialists at The Bethlehem Hospital.  I’m also seeing a highly esteemed Naturopath who is helping me fight this disease through natural means.  His pain management supersedes anything suggested by western medicine with zero toxicity, however at tremendous cost. I’ve been told this disease is ‘incurable’ however there are experimental treatments in other countries like Israel & Germany which have well documented successful reversal of all symptoms, but I could not realistically entertain the idea of trying any international treatment when many times I have to choose between putting food on the table or buying medicine.

I have been fighting this with everything I have but I must admit, at times there is much sadness and it can be hard to keep it together. The thought of not seeing the kids grow up is scary and depressing, one that I struggle with the most.

Thank goodness I have many wonderful friends and a very loving supportive family, which helps me to stay strong & positive through this difficult journey. Overall I would say I’m doing very well given my circumstances.

My whole life I’ve been entrenched in music so not being able to express myself through my music has been very difficult for my soul.  I’ve lost the ability to play guitar, bass, keys and even DJing can be difficult these days.  Recording my weekly radio show has been challenging… but it’s my last creative outlet that helps to keep me feeling connected to my music and the world.

I am a very private man and the idea of inviting the world into my personal life has been a very difficult decision.  Discussing it has only heightened the reality of this brutal disease, however as my condition worsens I’ve gotten to a point where I need to reach out for help and additional support. Not only for myself but for my family.

PS: To any close friends who have tried to contact me, please understand that typing on the computer is very challenging these days so I might not be able to get back to you quickly.

Much love,
PQM

Donations (0)

  • Anonymous 
    • $100 
    • 14 hrs
  • Anonymous 
    • $100 
    • 1 d
  • Natasha Hunt 
    • $50 
    • 2 d
  • Kev Van Gils 
    • $300 
    • 3 d
  • Herc Kass 
    • $100 
    • 3 d

Organizer and beneficiary 

Danny Bonnici 
Organizer
Bulleen, VIC
Manuel Anthony Napuri 
Beneficiary
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