Hello, my name is Paul.
I am 52 years old. I was recently diagnosed with a Terminal Brain condition when I was just 51 years old, called "Lewy Body Dementia" I had Not heard of it before, but I soon learned a Lot about what it is and there is NO CURE!!! It is Always Fatal !!!
My diagnosis was in October 2024, after having a PET scan, that showed Exactly where it was located already (at that time).
Since then, a LOT has Been Progressing! I was Afraid to tell Anyone about the hallucinations I was having. (Both Before and after my diagnosis). I didn't know what any of them meant? So, I didn't even want to tell my wife, to be honest, I was scared too! I have Always Shared Everything with her, she has been my Best Friend, my Everything!!! We will be married 30 Years in April of this year (2026) and Already been together since March of 1995. She has been my best friend and Always stood by my side through Many Battles with Health conditions for Many Years!! This battle, however is Much Different, because We Know there is No Medicine or Surgery, that will just "Make it go away!"
I Need Help!! I do Not want my Wife or our Adult Kids and Grandkids to suffer, from having to watch me get worse and I really need the Help to make sure none of them Ever have to worry about me. I want Good Memories for Them All of Me, as a Husband, Father and "Gramps" I Love Them All wig Everything I Am!!!
My main Wish is to Get Help with My Cremation services and Help for Final Expenses! I have been unable to work for Many Years and I have been forced to be on disability since an earlier below knee amputation.
I want to make things Easier on my wife and get things done in advance, so my wife will have Less Stress, or at least try to Relieve some of the Burden and Worry can be taken from such a terrible time, after I have passed on!! I do Not want Her or our Kids to have to come up with a large lump of money after I pass!
My memory has been Terrible, Many Falls and So Many other things/symptoms, which are all a part of the course for (LBD) Lewy Body Dementia. The hallucinations can get Very Scary at times and Not knowing what things are Real or Not real, takes a Huge Toll on Myself and My Family!!! Thank God, I finally told my wife and neurologist, about the hallucinations, so he was able to get the correct tests done and help get the correct diagnosis!
My condition, is Only going to keep progressing and Getting Worse, Not get any better!!! It is like Chasing Symptoms All The Time! I need Help to even bathe, get dressed, Remember to take my medications. I cannot cook for myself.
I had to stop driving a while ago, because I do Not recognize where I am at most times any longer. If, I can sleep (it causes REM Sleep disorder) to which I was just diagnosed with REM Behavioral Disorder and act out a Lot of my Nightmares/Night Terrors and Physically will fight, which have also made me fall out of bed and break my left hip and femur and had to have emergency full hip replacement and 17 inches of my left femur are all Titanium from the fall, as well as breaking my left shoulder in that same fall! If I do get to sleep, I wake up and do Not know where I am, think I may be talking with my mom or dad that have passed several Years ago!! It is a Very Cruel Disease/Condition, diagnosis for myself to deal with and my Loving Wife!!
It Kills me that she has to watch this!!!
Our oldest is helping care for me. I really do Not like that Any of my Loved ones have to watch my decline at all. I do Not want to Change into someone that I Never was...I have Always tried to be Kind to Everyone and it is scary to know that I may forget them, or possibly Lash Out physically and I Pray that this Never happens!!! I do Not want to become Anyone like that, That is NOT ME!!! Before it progresses Further and I am No Longer ME, I Need Help to get these things taken care of!!
I Love Everyone, not just my immediate family and friends, but All of Us Human Beings!! We All are Humans, Together, going through this Life, together and Each of us struggle with things at times or, other times, we are on Top of the World!! Everyone Deserves Respect & LOVE!!!
After calling and speaking with Several local funeral & cremation places around our area and all around, I am overwhelmed with so much information and pricing. Prices to just Die are Insane and range from $1,600 well up to $7,000 and depending on what someone may want, it can go So much Higher!
I just want my ashes to be scattered with my wife (I Pray she Lives a Long Life) but Our Wishes are to be Scattered Together, at one of our Favorite Places to have been fortunate enough to see a few times together at or Near Hotel Del Coronado on Coronado Island in the San Diego area of California and hopefully just outside of there in the water Together Forever!!!♥️
I am So Very Humbled and Appreciate Each and Every One of the Wonderful people in our community for suggestions and even Suggesting to try GoFundMe!!! Just Simply, Amazing humans at suggesting and Caring about Another fellow Human in Need of Help!!!♥️
To be honest, I do Not know how to attempt Any of these things I Need? I know I will Need to get and pay for Power of Attorney, maybe both Medical and Durable Power of Attorney??? I know I want it to be my wife, as my POA! However, the Costs may be outrageous and with just my disability payments, I cannot afford them at all and Need the Help!! Costs of attorneys can be Insane, just in general!
I am Not going to be able to Leave Anything of value, or anything for my wife, as I have tried for Years to get Life Insurance and Always denied from my type 1 diabetes alone.
I have been trying for a Life insurance since 2003 with NO Avail, Always denied!!
My apologies for all this information, but I have to be Honest as I Always have tried to be!!
I was asked to list a few small "Bucket List" things to do with my Wife and possibly our grandkids, Before I pass and can still be Cognitive enough to make some Final memories with them all.
One was getting to see our grandkids faces when they see their Favorite Disney Characters in person! (Currently 5, 3 & 2 years old) It was a Dream of mine to just see their faces!
I also want to Have at least 1 Weekend with my Wife to just Have TIME Together, for a Lasting Memory for Her, that she will Always be able to look back on, once I am No Longer Here!!!
I feel like You All may be able to Help out what I am able to do! Thank You, Every Last One of You! All My Best to You All and My Love and Blessings to Each One of You!!♥️♥️
Love to Everyone,
Paul





