On August 20, 2025, our sweet one-year-old son Owen went to the CHOP emergency department over a curious fever and what seemed to be a simple testing trip turned into an earth shattering diagnosis - high-risk neuroblastoma, a rare and aggressive childhood cancer.

With little time to react, Owen began his treatment journey and will spend much of the next year at CHOP undergoing a variety of specialized therapies. The reality of his treatment is that it is both intensive and ever evolving. Despite the amazing plan his medical team has since put in place, he will likely face unanticipated inpatient stays and testing to respond to the dynamic nature of his illness.

We feel very fortunate to have received a truly overwhelming amount of support for Owen and our family in the days since his diagnosis. We set up this page as a way to channel financial support that has been offered to us. All funds will be used to support Owen's treatment and care.

We sincerely appreciate your support and well wishes as our family fights this battle with Owen.

Amanda, Jason, Ela and Owen Barone

You can follow along with Owen's journey at his Caring Bridge website -- just request access or send a message.