Support Our Fight Against MDS and Financial Struggles

Single mother battling transfusion‑dependent MDS needs funds for rent, medical care

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Support Our Fight Against MDS and Financial Struggles

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Hi Everyone,
February 11, 2025 I was diagnosed with MDS bone marrow cancer due to a genetic mutation and it's complicated by autoimmune hemolytic anemia because I have become transfusion dependent. It's hell. It's not curable just treatable. I'm grateful for the medical care. The ONLY MDS treatment is lucpatercept which has side effects that are horrible. I've completed 9 rounds over last year, sadly it didn't work. Fast forward to January 12th 2026, Caleb, my sweet child called the cancer clinic to report my 2 days of incoherent and scary condition and the nurses gave him the charge to call 911. The EMTs took me from our little apartment to the hospital 6 blocks away and I was loaded on a flight for life helicopter and flown 22 miles away to a big hospital with a blood bank that could cross match and type donor blood and irradiate it while eliminate the antibodies my body makes to kill off the new safe blood. They stabilized me with chemo drugs and steroids for a week in ICU. As I was disoriented due to a 2.4 later 2.7 hemoglobin and 1/3 rd of the blood supply of a healthy person - my system began to respond and week 2 and now 3, I'm in a regular room with the most amazing nurses and doctors!
I have a port, I'm so grateful and tonight I received a unit of blood with no reaction and I feel it! Our red cells make our oxygen so I've been oxygen deprived for so long. The macrocytic anemia blew up in 2019 and unfortunately the hemotologist wasn't on top of game. So if you have spoken to me in recent years I likely expressed my cognitive decline, my weird blood, just unable to organize my thoughts or grasp the loss of executive functions.
Tonight I'm coming out of the fog to ask for help. I've applied twice for Social Security and been denied. Thinking hurts, everything is harder, zero energy and just living day to day trying to comprehend why if my cancer is on the compassionate allowance list for social security, why are they denying me?
Caleb has taken out student loans to cover our expenses but I'm behind 3 months on rent and his refund is not due until February 15th ish. I filed taxes today, praying it's accepted and that it's here in 21 days.
Tomorrow the Sheriff's office is likely to come serve the eviction papers and I'm here in the hospital trying to complete this form in hopes of sharing it on Facebook praying begging and pleading for God's mercy to make a way for us to catch up and not be homeless, I cannot believe this is happening! I'm ashamed, embarrassed and mortally afraid. Caleb is in college, he loves it, and we are mortified to be faced with this housing crisis again. We live in an affordable one bedroom 30% AMI so we pay 754 per month. I live in the living room and Caleb has the bedroom to himself. The Chaplain and the LCSW helped rally with me today, they called the lawyer I contacted for help but I've been in the hospital non stop and unable to breath much less advocate. I'm a DNR and that's because there would be no surviving a stroke, cardiac arrest etc. This last year with treatment has destroyed so much and untreated since 2019 was just a cruel twist of fate by a doctor who could have identified the cancer in 2 lab test.
My life is Caleb, being his person, supporting him through his education and keeping him safe. Being here is hard on me because I'm a way from him, but we use messenger so I can see his precious face and listen to his update on his new semester.
Please if you are able to help us overcome this financial crisis we would be safe. If you could please share this plea for help far and wide. This cancer is not curable, so I'm making peace knowing it's a long slow crawl through horrific side effects and yes I will fight like hell to survive for Caleb, he is worth the battle.
Thank you all so much and please keep us in your prayers!

Organizer

Jamie Colvin Carter
Organizer
Longmont, CO
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