Hi, my name is Ocean/Kobi Ayensuo, and I have started the GoFundMe to get support with my disability, accessibility in my home, to pay for carers support me and to get top surgery as a trans person.

I opened a previous go fund me to get private care for endometriosis surgery, due to unbelievably long NHS waiting lists. Unfortunately due to medical negligence and racism I had a very traumatic surgery, and a last-minute surgery when I was called in. Despite scans showing that I had endometriosis and scarring in my body, the doctors and surgeons opened me up and told me that there was nothing there. This has been happening since I was age 14, being an excruciating pain and being told by doctors that it is nothing. I am currently an electric wheelchair user. I have watched my symptoms deteriorate, I have worked hard since the surgery to be consistent with an anti-inflammatory diet which has meant that I am managing slightly better. I have a dynamic disability and I am an ambulatory wheelchair user currently.

Even though I am an ambulatory wheelchair user, PIP has given me the lower band for mobility. My health and my disability has taken over quite a huge aspect of my life, living in an inaccessible city, being denied carers by social care after an assessment that clearly showed I was struggling, and struggling to meet my day-to-day needs.

I am musician, poet and creative day-to-day. You can check my page out at @oceankobi_ayensuo_ on Instagram and TikTok to see the worlds I build and the music I make. I am also the founder of Black Trans and Queer Homes London an organisation to support black queer and trans people to connect and build homes together - with plans to build mutual aid support for our community in 2026. I am also currently making my debut album 'Coming of Age' and you can donate to help me make this a reality here: https://www.crowdfunder.co.uk/p/coming-of-age-album

I'll be honest currently I am -£1300 into my overdraft. This is a vicious cycle - I am not well enough to support myself with work the way I used to in the hospitality or bar work due to my symptoms. I am however, a freelancer and an artist - having support with carers and a personal assistant and having my basic needs met will mean that I am able to continue my work as an artist more consistently. I'm opening up this GoFundMe so that I can pay for carers and a personal assistant, so that I can replace the dangerous, unstable ramp outside my house - every time I leave my house, it is a balancing act, the ramp has collapsed multiple times whilst I am still on it with my wheelchair, I often smash into the concrete wall as I come down the ramp outside my house and it is damaging my wheelchair. With your help, I can consistently pay my rent, afford a lawyer to appeal the PIP decision and get a higher band of PIP so I can support myself as a disabled ambulatory wheelchair user.

2026 I want to be the year where I start to thrive. There are so many things wrong, so many of my basic needs are still unmet. If you follow me online, you will know that I recently did a callout for a private chef to support me with food day-to-day because due to my symptoms I struggle with this. I am currently about to select my private chef. Your donations will also help me to be able to support me to pay for this care as well.

I'm also trans and I really dream of having Top Surgery of having euphoria in my body. Funds that I am able to raise from this gofundme will go towards finally being to book and pay for top surgery as well through private care as NHS waiting list are years and years for trans healthcare. I would like to live a life that I recognise in my body and in my home. I would like to be a musician full-time and create worlds for people that help them to heal and feel. There are so many barriers stacked up against me. I am trying to not let them define me. In order to do so I need to be resourced enough to scaffold myself and support and cater to my needs.

In 2024 I was housebound for 10 months due to medical negligence and not being able to afford a wheelchair, it was community support and GoFundMe that supported me to reach that milestone of getting my wheelchair and finally reclaiming my independence in this way. I have also been homeless and have sofa surfed from 2022 to 2023 after escaping home after being ridiculed for being a trans and queer person who is also building a life as an artist. I have lived through the impossible and I am still making so many possibilities. I won't ever give up. And so I'm asking for your support again, if you've ever loved my music, my work, or if you just resonate with my story, please donate and share to everyone you know.

Big love, thank you for reading and for being here

Ocean/Kobi