Support Nick Toof's Battle with Brain Cancer

*We would like to apologize if this is the way you are hearing of such tragic news. Each time they have to share this news it's incredibly difficult and we are asking for grace and understanding. *

On behalf of Brandi, Nick, and all their family friends I am setting this up to support them. Nick is an amazing husband, son, uncle, brother, and friend. The absolute unthinkable has hit these sweet people and above everything we ask for prayers and support. If you would like to Venmo directly to Brandi and Nick you may at Brandi-jones-88 last four 9640. Here is a message from Brandi:

Hello all,

I am Brandi Toof, my husband is Nick Toof. Nick has recently been diagnosed with a diffuse midline glioma. This is rare and rather aggressive form of brain cancer.

Backstory-

In May of 2023 nick started having double vision. This led him to the eye doctor who essentially cleared him after trying prism glasses. They sent him to an ENT thinking maybe the double vision was related to his chronic sinus infections. He had his first CT scan in September of 2023 which showed clear sinus. This led to being sent to neurology in Cheyenne. In September of 2024 he had another brain CT scan which revealed a mass sitting within the tegmentum which is associated with the brainstem. At this visit I asked them to check the CT from 2023, and it was verified that it was there but had been missed by radiology. Following the 2024 brain scan we tried pulse dose steroids (1 gram/ day of solumedrol). Nick had a horrible reaction to the medication which ultimately landed us in the ER. Following this I requested to have us sent to Denver for further treatment. On January 13th, 2025 we had our first appointment with a neurologist in Denver who within one hour had more of a plan for us than anyone else. Initially we the doctor was thinking maybe MS, but after re reads of scans by Denver’s neuro radiology team it was listed as likely malignant in nature. This instantly flipped our world upside down. We went for a special scan in Longmont, CO to look at further growth and blood flow. This indicated that the mass was continuing to grow but was not appearing to be hyperperfused (meaning not a ton of blood flow). Fast forward to March 6th, 2025, we had our first appointment with neurosurgery. We were then given the worst possible news. This is rare and aggressive and he will likely succumb to the diagnosis at some point.

While we are maintaining high hopes, we are already drowning in medical bills. This is just the start. We are looking at a second opinion in New York which will require airfare, overnight stays, food, and transportation. While we are fighting to get Nick the best care possible and fight for his life, we will have a hard time working which will make paying our regular monthly bills more difficult. I will continue to work as much as I can, but I cannot send my husband alone cross country.

Nick and I have been together for 5 years this year and will celebrate our 1 year of marriage on June 22nd. Please help me save the love of my life and my person. I cannot do this life without him.