Support Neurofibromatosis Treatment for a Brighter Future

Hey everyone,

This year has been a wild ride as I’ve continued my fight with Neurofibromatosis.

To catch you up: things really escalated with my condition, and I’ve been jumping through hoops—visiting doctors and hospitals—trying to get answers. After a long search, I’ve finally found the right doctor.

On July 23, I met with a Neurofibromatosis specialist. There’s been some major progress in treatment over the past few years, and now there’s a new targeted chemotherapy pill called GOMEKLI.

The plan right now is to get my insurance to approve a tumor removal surgery. If it’s approved, I may need to wait before starting the medication.

On September 17, I’m scheduled for a full-body MRI and a heart echo. The cost for these scans will be around $3,000. Looking ahead to next year, I’ll continue the GOMEKLI treatment, and my insurance deductible will be $3,600. Thankfully, I have coverage—because this medication costs $30,000 a month.

This GoFundMe will help cover my medical expenses for the rest of this year and next. Your support means the world to me—I’m finally seeing light at the end of the tunnel, and with your help, life is about to get a lot easier.