Support Needed for CRPS Surgery Recovery

Hello everyone, I have CRPS which is complex regional pain syndrome. The definition of it is Complex regional pain syndrome (CRPS) is a painful condition of the arm, hand, leg or foot that occurs after an injury, such as a fracture. There is no simple cure and no single recommended treatment for CRPS – treatment aims to restore movement and function of the affected limb. Most people recover from CRPS. But a lot of them don’t. It’s like cancer you can go into remission and it can come back.

If you haven’t seen the Netflix documentary Take Care Of Maya you need too. The struggles that the family went through while they were dealing with her Crps that just came out of now where is crazy. It’s a very sad documentary with a bittersweet ending. I feel the pain of what that family went through, not just with the Crps but how ignorant the medical community was about Crps. They don’t know anything about it.

It is a very difficult disease to deal with. I have had it for 8 years now and its nickname is called the suicide disease. It’s a nerve damaging disease and it’s so painful that even the air hurts. I am on nine different kinds of meds that I have to take daily now. It started out in my foot and now it’s all over. I’ve been dealing with it for so long now I am now used to the pain. But it’s now attacking my organs. I now have something called leiomyoma which is not a threatening disease but it’s painful. I have uterine fibroids and since those are considered a foreign object in the body the CRPS attacks it and makes it worse. I am having surgery done to remove my uterus and cervix and I am so scared because the CRPS makes it difficult to have the surgery.

I’ve been bed ridden for two months now and my job is on hold thank the Lord! They are very understanding and patient and I appreciate UHC for giving me the time off to take care of this. But since I’m not working that is why I am doing this. I seriously hate to ask but I don’t know what else to do. Any donation is appreciated. I really need to raise $900 but I am only asking for $250. I will figure out the rest. The $900 dollars is my total copay. $150 to the doctor to do the surgery and then $750 will go towards the hospital.

I know it’s hard for everyone right now but I need the assistance.

My husband David is so wonderful, patient and understanding. He has been taking care of me for these past eight years. I don’t know what I would do with out him. He is the love of my life and I am trying to be positive and he always is. He is hoping that after this surgery I will be better. I love him so much I don’t want to lose him over all of this. It’s just so much for him to bear. He works in the Vegas heat all day and then he comes home and takes care of me. I’m really doing this for him so he doesn’t have to stress out anymore. I love him so much he is my rock. I don’t know where I would be with out him.

this disease is horrible. I am so scared to have this surgery done since the crps makes it more difficult.

If you have any questions please feel free to ask me whether you donate or not. I hope everyone has a wonderful day.