Our son Nash, who is 8 years old, was diagnosed with a rare bone condition in his left hip called Legg-Calvé-Perthes disease in September 2024 after a 2-week period of an unexplained limp. This rare bone disease has caused the head of his femur to die (necrosis) due to a loss of blood supply (avascular). The exact cause of this condition remains unknown, and there is no known cure. The main goal is to keep the head of his femur inside of his hip socket.

Nash and his dad flew to Texas to see a doctor who specializes in Perthes disease on August 26th. This doctor has put Nash in a wheelchair and walker and has made him totally non-weight bearing on his left leg. We will fly back to Texas on September 23rd to get a Petrie cast (a cast that will hold his legs as far apart as they can go) put on for 6 weeks. After the cast is removed, he will regain strength in his leg for a couple of weeks, then fly back to Texas and get a Triple Pelvic Osteotomy. They will cut Nash's pelvic bone in 3 spots and move it down to fit over the head of his femur better.

This will be a long, grueling year for Nash and our family. The medical bills and travel expenses have already piled up over this last year and will continue to grow as we get Nash through this hard surgery and recovery. We want to do what's going to be best for Nash and be able to give him a functioning hip for as long as we can. We know at some point in Nash's early years of adulthood he will need a hip replacement, but our goal is to get him as far in life as we can without it.

My family and I would be forever grateful for any support, no matter how small, even if it's just a prayer for him. We need help at this time. Please, please, please share this to get the word out and have your friends and family share this for Nash as well! Thank you so much, and we appreciate you helping us in this hard chapter.