Naomi, my daughter, was born with a severe brain bleed that left her brain with severely enlarged ventricles and Significant brain loss. After birth Naomi spent three weeks in the NICU. During that time, we learned she had significant brain loss due to a enlarged ventricles, CVI (a vision impairment), and doctors told us she would most likely never walk, talk, breathe, or eat on her own. Despite these challenges, Naomi left the NICU without oxygen or a feeding tube, which was a huge milestone for us. Later around 3 months of age, Naomi developed hydrocephalus and required brain surgery on her 4 month birthday to place a VP shunt. After the pressure from her brain was released, a cyst developed, and she needed a second brain surgery on her 5th month birthday to drain it. 2 brain surgeries all before 6 months of life.

Once Naomi recovered from the second surgery, Naomi began having seizures—infantile spasms, which are the most severe type for a young child and occur frequently. This has brought new challenges and significant learning delays to Naomi’s life. Over the last four months, we have moved to a Keto diet to try and control her seizures. This has provided great progress in her development, but it is very strict and requires constant attention.

We have began researching new treatments and therapies to help Naomi continue to progress, but the costs are overwhelming. We are raising money to cover ongoing medical bills, new therapies (such as water therapy, DMI, stem cells), equipment Naomi may need, and any future surgeries she may encounter.

We are so thankful for our community of friends and supporters, and especially our Church Legacy House. We could not have made it this far without them. Any contribution helps us secure a new outlook for Naomi and gives her the best chance at a brighter future. Your kindness and generosity mean the world to us.

Love The Mascittis!

Naomi, Hudson, Catherine & Paul