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Support Naomi Grace's Fight Against Alagille Syndrome
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$2,185 raised of $8K
31 donations
Healing One Liver At A Time
Naomi Grace’s Journey with Alagille Syndrome
Meet Naomi Grace
At just 3 years old, Naomi has already shown more courage than most do in a lifetime. She was born full-term, but after delivery, doctors quickly discovered something was wrong.
Naomi was diagnosed with Alagille Syndrome — a rare genetic disorder that occurs in only 1 in every 100,000 babies born. This disease affects vital organs including the liver, heart, brain, and kidneys.
On July 16, 2025, Naomi received a life-saving liver transplant. Today, she continues her brave fight — inspiring everyone with her light, laughter, and strength.
Why We Need Your Help
Because Alagille Syndrome is so rare:
✔️ Awareness is limited
✔️ Research is scarce
✔️ Families like ours need more support
Your help can make a difference by:
Supporting Naomi’s ongoing medical care & recovery
Spreading awareness of Alagille Syndrome
Building support networks for other families
How You Can Help
Donate – Every gift helps Naomi’s journey
Share – Tell her story to spread awareness
Pray – Stand with us in faith and love
✨ With God’s grace, Naomi’s strength, and your support, we believe healing and hope are possible — one liver at a time.
With Gratitude,
Steve Scott & Family




