Support Naomi Grace's Fight Against Alagille Syndrome

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$2,185 raised of $8K

Support Naomi Grace's Fight Against Alagille Syndrome

Support Naomi Grace's Fight Against Alagille Syndrome

0% complete

$2,185 raised of $8K

31 donations
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Healing One Liver At A Time


Naomi Grace’s Journey with Alagille Syndrome


Meet Naomi Grace

At just 3 years old, Naomi has already shown more courage than most do in a lifetime. She was born full-term, but after delivery, doctors quickly discovered something was wrong.


Naomi was diagnosed with Alagille Syndrome — a rare genetic disorder that occurs in only 1 in every 100,000 babies born. This disease affects vital organs including the liver, heart, brain, and kidneys.


On July 16, 2025, Naomi received a life-saving liver transplant. Today, she continues her brave fight — inspiring everyone with her light, laughter, and strength.


Why We Need Your Help


Because Alagille Syndrome is so rare:

✔️ Awareness is limited

✔️ Research is scarce

✔️ Families like ours need more support


Your help can make a difference by:


Supporting Naomi’s ongoing medical care & recovery


Spreading awareness of Alagille Syndrome


Building support networks for other families


How You Can Help


Donate – Every gift helps Naomi’s journey

Share – Tell her story to spread awareness

Pray – Stand with us in faith and love


✨ With God’s grace, Naomi’s strength, and your support, we believe healing and hope are possible — one liver at a time.


With Gratitude,

Steve Scott & Family

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Organizer

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Steve Scott
Organizer
Newark, NJ

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