Three weeks from now, I will be running a marathon.

Not long ago, that would have felt like a straightforward goal. Now, it carries a very different weight.

I am living with Myasthenia Gravis (MG), a rare autoimmune condition that disrupts communication between nerves and muscles. It can cause fluctuating muscle weakness, fatigue that doesn’t match effort, changes in vision, and difficulty with things as basic as speaking or swallowing. What makes it even more complex is its unpredictability—symptoms can shift not just day to day, but hour to hour.

Like many others, my path to diagnosis was not simple. There were questions, uncertainty, and moments that didn’t quite fit neatly into a clinical picture. And for those who are seronegative, the process can be even more challenging, with fewer clear markers to guide diagnosis and treatment.

Despite this, I’ve continued to train.

Not because it’s easy—it isn’t—but because I believe deeply in showing what is still possible, even when your body doesn’t always cooperate the way you expect it to. This marathon is not about performance. It’s about persistence, and about choosing to move forward in the middle of uncertainty.

I’m using this moment to raise funds for Myasthenia Gravis research and awareness. There is still so much that is not well understood about this condition, particularly when it comes to diagnosis, variability in symptoms, and long-term management. Better research means earlier diagnosis, better treatments, and improved quality of life for those living with MG.

If you feel moved to support, your donation will go toward advancing research and helping others who are navigating this condition.

If you’re not in a position to donate, sharing this page also makes a meaningful difference.

Thank you for being part of this.

— April