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Hello, my name is Lesly and Mini (Mirna) is my mom. She lives with a disease called Scleromyositis. The disease entered our lives about 10 years ago—three undiagnosed, seven diagnosed. Myself and my three brothers have given her 24-hour care every single day since then. I’d be lying if I said things were easy, especially for her. Such a beautiful and extremely motivated individual to be limited to such extreme measures what seems to be like overnight.
My brothers and I do the very best we can with doing and also getting her everything she needs since this all started. Unfortunately, she has reached a point where she needs special neck, arm, and back braces to complete her physical therapy, a wheelchair, shower chair, handicap bathroom adjustments, and a special bed to sleep because of her progressed condition. The list goes on. These things aren’t cheap or easy to get. So we are willing to take whatever we can get to make my sweet mother’s life a little bit easier! Blessings to all and Happy Holidays ❤️



