“Happiest boy ever”, “always a smile on his face”, “pure joy” are some of the things that describe Miguelito.

We are writing to you today to ask for any assistance you can provide to help one of our very own Kinder students, Miguel Pinazo. He lives with an extremely rare congenital disorder called Parkes Weber Syndrome, which causes his vascular system to have severe discrepancies and has seriously impacted his left leg.

Miguel in his short life, has endured 3 major surgeries, 2 vascular ablation and 1 orthopedic surgery. His last surgery was in April 2023. The goal of the surgery was to cut out the growth plates in his left knee hoping to give his right leg a chance to catch up as well relieve some of the pain the imbalance was causing him. Unfortunately, the results as of today are not what was expected.

His parents need to take him to a series of specialists in Boston and New York to ultimately prepare for a very serious surgery in the coming months.

As you are aware, many of these rare disorders require treatments/tests not fully covered by insurance and some not at all. This puts a serious financial burden on his parents and at this time we are asking for any help to alleviate the family, and to continue with the medical care that Miguel needs in order to fight the deterioration of his leg, as well as continued monitoring of his disease.

Thank you for your continued prayers and support for Miguel and his family.