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We are the Campos family. We are raising funds for our son, Maddox.
Maddox was born on June 30, 2024. Soon after birth, he was transferred to another hospital for a higher level of care in their NICU due to issues with his heart. During his first week of life, Maddox had many feeding difficulties and tests were run to figure out why. It was then we discovered that Maddox was born with a genetic condition called SOS1 Noonan Syndrome (spontaneous, not inherited by either mom or dad). He was also diagnosed with a rare chromosome 1q21.1 microduplication. On 8/7/2024, at only 5 weeks old, Maddox underwent surgery to have a G-tube (feeding tube) inserted along with a procedure to remove excess tissue from his airway to help him breathe and feed better.
As of 8/8/2024, Maddox is still in the hospital. His 3rd one in his short life so far. He has not been home yet.
Maddox’s conditions will affect his life in a variety of physical and mental/emotional ways, some of which we will not know until the future. As of now, we are expecting many specialist appointments and follow up including, but not limited to: Neurology, Cardiology, Hematology, Ophthalmology, Endocrinology, and Urology.
He will also need physical therapy, occupational therapy, speech therapy, feeding therapy, and Early Intervention services.
The funds we are raising are for Maddox’s medical bills, time missed from work due to hospitalization, care, and many appointments, and any supplies and supports needed to ensure that Maddox has the best quality of care and life moving forward.
We appreciate any and all donations, big or small and will keep everyone updated with how our tiny but Mighty Maddox is doing.
Thank You All! ❤️

