Megean’s “journey” with ALS started over three years ago. What started as slight, involuntarily, muscle twitches in her left arm, has now become a fully disabling course of ALS for Megean, leaving her dependent on others for all daily activities.
We know four things about ALS:
1. Anyone can get it.
2. No one knows how we get it.
3. There is no cure.
4. It is always fatal.
This insidious and menacing disease, Amyotrophic Lateral Sclerosis (also known as Lou Gehrig's disease) is a specific motor neuro-degenerative disease that causes the death of neurons which control voluntary muscles.
Whether it is to scratch your nose, eat, dress, walk, talk, hug your children or swallow your own saliva, ALS gradually takes everything away like a thief in the night. And if this isn’t cruel enough, your brain and mind remain intact leaving you ever aware of the devastating toll on your body and literally trapped in a useless body. The cure is out there; there just isn’t enough funding for research to find the answers.
Initially, Megean, Sal, and their children, Ally, Hannah, and Sal Jr. joined the national fight against ALS, participating in fundraising events whenever possible. The family stayed strong and kept their spirits up despite growing symptoms and a need for all of them to take over tasks for Megean at home.
As progressively as the disease, the increased daily care has overtaken their time, energy, emotions and finances. It has become necessary for her to use a Hoyer lift to be transferred in and out of bed, her chair where she remains daily, or into a wheelchair for trips outside of the home. With no equity left in their home, they are now forced to seek a smaller Ranch style home to meet Megean’s progressive needs for more up-to-date handicap housing & equipment.
Megean was forced to leave her job three years ago as the Food Service Director/Chef at Mates Academy in Manahawkin. Since then, Sal has taken the role of Megean’s primary caregiver and advocate, severely impacting their financial security.
Without immediate financial help, they will not be able to relocate or continue to care for Megean's growing needs.
Any support you can give to this family is deeply appreciated and will make a world of difference in light of these setbacks. Please consider donating to support Megean and her family in this fight.