Mavryck is 6 years old.

Six months ago, he was a healthy, active little boy — running, playing, laughing, going to school, and doing everything a typical 6-year-old does.

Mavryck has been diagnosed with Cerebral Adrenoleukodystrophy (ALD) and Addison’s disease — two devastating and life-altering conditions.

Cerebral ALD is a rare, genetic, terminal brain disease. It is caused by a mutation that prevents the body from properly breaking down very long chain fatty acids. These fatty acids build up in the brain and destroy myelin — the protective covering around nerve cells. It is the most severe form of ALD, marked by a rapid and relentless inflammatory process that destroys the brain’s myelin. Once the damage begins, it spreads quickly. Children who were once thriving can become completely dependent in a matter of months.

In just six months, Mavryck has lost everything he once knew.

Addison’s disease (adrenal insufficiency) means his body cannot produce the critical hormones needed to respond to stress or illness. Without constant medication and careful monitoring, it can become life-threatening very quickly.

Mavryck now requires 24/7 care from his parents.

He is fully dependent on them for every need. Their lives have become a nonstop cycle of medications, monitoring, appointments, labs, travel, and round-the-clock vigilance. The emotional weight of watching your child lose abilities is unimaginable. The financial burden that comes with full-time caregiving and ongoing medical needs is overwhelming.

Every dollar helps ease the burden so his parents can focus on what matters most — caring for their son and spending every moment they can with him.

This family is living through the unthinkable — facing the reality of what this disease can do, while still choosing to fight for him every single day.

Please continue to lift Mavryck and his family up in prayer. Share his story. Support them in any way you feel led. Awareness matters. Research matters.