Many have heard by now that a member of our OCMSG family, Taylor Troise, recently received some news that no parent is ever prepared to hear. Her son Mason (4 years old) was diagnosed with a rare condition called diffuse intrinsic pontine glioma (DIPG).
Diffuse intrinsic pontine glioma (DIPG) is a brain tumor found in a part of the brain stem called the pons. The pons controls essential bodily functions such as heartbeat, breathing, swallowing, eye movement, eyesight, and balance. DIPG affects children almost exclusively. Approximately 200-400 children in the United States are diagnosed with DIPG each year. DIPG accounts for roughly 10-15% of all brain tumors in children. DIPG is an aggressive tumor that interferes with all bodily functions, depriving a child of the ability to move, to communicate, and even to eat and drink. As a DIPG tumor begins to grow, it puts pressure on the nerves that control the essential bodily functions regulated by the pons. Children with DIPG commonly experience double vision, reduced eye movement, facial weakness or asymmetry, and arm and leg weakness. They also have problems with walking, coordination, speech, chewing, and swallowing. As the tumor progresses, it also interferes with breathing and heartbeat.
As you can imagine, this news has been devastating to Taylor and her family. She is currently out of work, so she can care for Mason during this time. Please join us in raising money to help minimize the burden of medical bills, medications and daily living expenses.
Taylor and her family greatly appreciate all of the love and support they have received thus far.
Please keep Taylor and Mason in your prayers.
Thank you and Happy Holidays to you and your families. ❤️