Support Majoure's Fight Against Pompe Disease

On May 3rd, 2025, Majoure Da’Cari Clark was born at Adventist Health Bakersfield. He was born at 36 weeks and 5 days. He weighed 7 lbs 15 oz. He has been in and out of the NICU since he was born.

He was diagnosed with Pompe disease on 5/19/2025. He was then airlifted to UCLA. He is currently at UCLA due to his heart being enlarged from this disease.

I am raising money to help the parents of Majoure: Angela Harris & Jordan Clark. While he is currently undergoing treatment to help give him a fighting chance against this rare and incurable disease, please keep this strong little man in your prayers. His parents also have a 1-year-old daughter, are currently out of work, and having car issues. They are hours away from home.

Pompe disease, also known as acid maltase deficiency (AMD) or glycogen storage disease II, is a rare, inherited glycogen storage disease that affects the heart and skeletal muscles. There are two types of Pompe disease: infantile-onset and noninfantile-onset (juvenile or adult). Pompe is classified as a metabolic muscle disorder, one of a group of diseases that interferes with processing and storage of complex sugars (carbohydrates). The build-up of sugar molecules in muscle cells causes them to break down.

This rare disease is estimated to occur in approximately 1 in every 22,000 births.