Hello! If you don’t know me, my name is Kaylynn Hennessy. I’m a new mom of a baby girl and her name is Mackenzie. When she was born, my husband and I were told she couldn’t be healthier! She continued to be healthy and hit all of her milestones.

At her 4-month check-up, I brought up her head shape. I noticed that her head wasn’t round and the sides were narrow. That is when the pediatrician noticed the soft spot on the top of her skull was fused too soon. She recommended for us to see a specialist, and they confirmed that she has scaphocephaly (Craniosynostosis), which is when the sagittal suture (running along the top of the head) fuses prematurely, creating a long, narrow, "boat-shaped" skull with a prominent forehead and back of the head. This can restrict brain growth and increase pressure inside the head, affecting development, vision, and causing headaches.

We talked with the surgeon about what the next steps need to be, and it involves a more invasive surgery than if she was younger. (She is 5, almost 6 months now.) A neurosurgeon will work alongside the craniofacial surgeon to remove the middle suture that has fused and reshape her skull. This surgery will begin on February 6th, 2026. Unfortunately, due to this, our insurance deductible will have started all over. We are a one-income household, and these doctor visits, tests, and the surgery are expensive, even with insurance. That led us to asking for help. Anything you can donate will help us greatly. We know God will guide the surgery and our girl will be in good hands. Thank you for reading our girl's story, sharing, and donating if you’re able. God bless you.