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Every single doctor to encounter Lydia has labeled her a medical miracle. Just simply existing is reason enough, but also many details not easily shown on camera like her maintained flexibility and ease of learning have led top neurologists to believe Lydia IS the exception to the rules they’ve come to know.

She has quite literally shattered the ceiling placed above her by her diagnoses.

Genuinely—we no longer know her potential. Men and women of science no longer feel comfortable explaining Lydia’s likely outcomes. She’s paving a path all her own based on an incredible collaboration between doctors of traditional and emergent medicine coming together for our little girl’s sake.

Miss Lydia was born happy and healthy but contracted a deadly bacterial meningitis infection at only 3 months old. She spent 54 days in the PICU and lost over half of her brain matter, but ultimately was victorious against her 1-in-4 survival odds!

We’ve given Lydia every opportunity we can. She’s enrolled in many play-based therapies in hopes we can maximize her long term quality of life by taking advantage of early years neuroplasticity. She maintains constant care between 11 specialty physicians and 10 therapists.

We’re grateful to be financially supported by private insurance and disability Medicaid for the bulk of Lydia’s medical needs. However, American health coverage isn’t designed to cover majority of the treatments that create lasting change. We pay these emerging treatments out of pocket—and for a while had been holding our own with these outrageous expenses.

But, it’s getting too extreme for one family to shoulder it all alone.

Stem cell therapy, for example, is tied up in the world of Big Pharma/Healthcare. Not only is the research lacking—but even being sabotaged. The treatments Lydia needs have been in clinical trials for an entire decade. Safety and efficacy has been confirmed with every single patient. And yet…Americans still have to wait for access to this groundbreaking care. It is currently the best hope for kids facing neurological disorders such as cerebral palsy.

Our hope is to take Lydia for this specific type of stem cell therapy every 4 months, either as long as we can afford it, or until it no longer is effective. Modern medicine says cerebral palsy is incurable. This approach, however, is unprecedented. We genuinely don’t know what Lydia’s future could look like with continued procedures.

Each stem cell treatment is $18,000 and an additional $14,000 in follow-up therapies and after care. That means one full round is $32,000. The fundraising goal of $127,000 will cover the three entire cycles of care planned for 2026.

This will not be the entirety of our medical expenses. We’ll still face deductibles, co-pays, out of pocket weekly therapies, evaluations by specialists, some equipment that insurance refuses, toys/tools, and much more. We try to decide Lydia’s year of needs in advance so we can plan accordingly—but discussions are constantly evolving based on her needs and our knowledge of resources. We pay these sorts of things using our family income.

The stem cell -> therapy intensive -> associated travel is the most accurate set of expenses I’m able to give as they are a constant need…at least for the foreseeable future.

We truly try our best. We’re giving these bills everything we’ve got. But we just cannot make up that type of sum time after time.

Thank you for helping us to keep the miracles going for our sweet girl. It means the world that you see her spark and fight for her alongside us. <3

With love from Alexa + Lydia

Follow along on social media adventures.of.mommy for proof of funding allocation!