Support Lydia's Alternative Cancer Treatment

Hello I am Rene , I am fundraising for my Foster daughter Lydia. She is 3 yrs old and recently has been brought into my care. Lydia knows me a Nae Nae , I’ve been in her life since the day she was born. I actually cut her umbilical cord . I was there when she started crawling and even when she took her first steps. I love her like she’s one of my own. How does this happen ,she finally get’s a chance at a normal life living with me , playing, going to parks and going to the Brewer games, going to daycare for the first time , making friends. I noticed one day she couldn’t lay her legs flat while sitting on the floor. Then noticed she was starting to limp. I thought maybe she was having growing pains or just moving around more than usual. Took her to the orthopedic Dr and he kinda brushed it off and made a PT appt. Said see ya in 6 months. Then in a matter of a few days literally she couldn’t bent her body forward. Noticed she was very stiff and kept arching her neck backwards. Very very very tired. Wouldn’t eat any thing and barely drank anything either.

I then took a video of me getting her ready in the morning to show her new pediatrician for Fridays appt. It got so bad at daycare that we just took her to childrens right away that morning May 9th , where they immediately got a CT scan and that confirmed she has a mass on brain blocking her spinal fluid. That’s same day they had to put drain in her brain. Then that Monday brain surgery.

I’ve been in the hospital everyday with her since day one. Everytime she gets a a scan or surgery or even woken up for vitals, she cry’s for her Nae Nae.

I’ve exhausted all my sick and personal time and vacation to be by her side . She told me Nae Nae I wanna go home .. I had to tell her u can’t baby .. but as long as u can’t , I can’t either ok baby ?.. she replied ok .. her little voice saying ok has melted every nurses heart here at the hospital.,

On Wednesday they had the tumor results and was diagnosed with Medulloblastoma. Medulloblastoma is a type of brain tumor that primarily affects children. It originates in the cerebellum, which is the part of the brain responsible for coordination and movement control.

This tumor grows rapidly and has spread to other parts of her brain and spinal cord. She has had surgery to remove as much of the tumor as possible, and will be followed by radiation therapy and chemotherapy.

UPDATE: weeks 6 here at the hospital. Lydia has now had 5 surgeries ,the latest one being Thursday June 13th ,when I noticed her head was leaking . They had to have an emergency surgery to remove it and put a EVDrain back in. This baby’s strength has giving me hope. Not even 24 hrs after brain surgery she was trying to communicate w knotting of her head and I started to cry and she reached out her arms to try to console me. Then she wanted to booop me on my nose ! ( that’s are thing) !

We are currently in the PICU due to her having a full blown seizure followed by days of small sub clinical ones. We were literally 2 hrs away from discharge. I’m just glade it happened while we were still here!

Since this is her in the hospital and not me my FMLA doesn’t pay out. Just saves my job until Aug 1st. With this set back looks like I won’t be able to come back to work by then. She now has two more weeks here ( at least) and can’t start radiation until her head is healed and the chemo will make that process take longer. Then we’re looking at 6 weeks Mon~Friday radiation and chemo.

When we do actually make it home , I will need to be her nurse and her Nae Nae . Unfortunately I don’t get money for that. I’ve literally given up my whole life for Lydia! To be by her side every single day and every single night! I told her I’m not going home till u go home ok ? She sweetly replied ok ! With all that said it’s hard for me to ask for help but in all reality I need help! So anything will help at this point! Lydia’s Fight is My Fight!!

#childhoodcsncersucks