
Support Luke Wade’s Healing Journey Today
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For the past 8 years, the Wade family has been navigating the medical complexities for their son Luke. These complexities have taken them all over the state of Missouri to a plethora of specialists without answers. In January of 2024, Luke received the unfortunate diagnosis of PANDAS (Pediatric Autoimmune Neuropsychiatric Disorder) . Unfortunately, this diagnosis is not well received by mainstream medicine, thus they do not treat it. To protect their family's dignity, the Wade's have requested that specifications about symptoms and experiences involved not be shared publicly due to the nature of the illness.
Thank God for the physicians at Covenant Pediatric Wellness Center and Covenant Pediatrics who got right to work on a treatment regimen. They began homeopathic treatment in combination with antibiotics and steroids. While treatment was showing improvements, Brittany had a gut feeling that something bigger was going on neurologically due to PANDAS.
Luke began seeing a neurologist at Hope Neurology who discovered that the strep germ had in fact sparked an autoimmune responses and had turned his own body's cells against his brain. Luke's brain is actively under attack by the very cells that are supposed to be fighting off the germs that keep him sick. Through the testing process, it was discovered that the inflammation in his brain from the germs and his cells wrongly attacking the healthy cells have caused brain damage to the right temporal lobe. The damaged brain tissue does not allow for the proper electrical current flow and has now caused him to have a diagnosis of temporal lobe epilepsy. Due to the severity of his internal illnesses despite rarely presenting with sick symptoms and the astronomical viral infection numbers in his lab work, this prompted an investigation of his immune system function. Unfortunately, the work up revealed that Luke's body does not make enough germ fighting cells on its on and was diagnosed with CVID (common variable immunodeficiency). This means Luke will never have a strong enough immune system to fight of the germs that are plaguing him. Treatment consists of monthly IVIG (intravenous immunoglobulin) to give him someone's immune system to fight the germs he cannot fight off himself, which is all of them!
Luke's treatment falls into their family's out of network benefits! This is where they need your help. Luke's first treatment will cost the Wade family $3800 which is only the remaining amount due of their out-of-network out of pocket max and even the full cost of a treatment. After this is met, the remaining treatments for 2024 will he covered in full; however, when January 1, 2025 rolls around, the Wade's are responsible for the full out-of-network out of pocket max in the amount of $4200 for the first treatment of the year. The good news is, that every monthly treatment following January will be covered 100% (until 2026 of course). The $8000 is ontop of Luke's weekly and monthly medical expenses, prescriptions, time off from work for Brittany to take him to appointments, etc.
As if 1 child wasn't enough, the Wade's youngest son is in the beginning stages of testing for the hereditary immunodeficiency with 1 test already revealing the high probability of needing infusions for Jaxon as well.
Your gift, no matter how big or small, makes the difference in their lives and is greatly appreciated. The Wade's are known for helping others every chance they get. It is now our turn to help them!
Organizer and beneficiary
Megan Herrbach
Organizer
Jefferson City, MO
Brittany Marie Wade
Beneficiary