
Support Liam with ALD
Donation protected
The Jackson family needs our support
Liam Jackson, my 6-year-old nephew was diagnosed with Cerebral adrenoleukodystrophy is a form of X-linked ALD that usually occurs between ages 4 and 10. The white matter of the brain is progressively damaged (leukodystrophy), and symptoms worsen over time. If not diagnosed early, childhood-onset ALD may lead to death within five to 10 years.
Liam has been struggling with diminished vision, no spatial awareness, loss of motor skills and more.
Liam's condition has progressed too far for any treatment options. In fact, if they pursue any of the treatments it could speed up his progression. Additionally, the doctors do not believe he has 5 years, they believe it is much shorter based on how fast he has already declined in the last couple of months.
We want to help them with the medical bills and other medical expenses that are popping up now that insurance does not cover.
Organizer and beneficiary
Charlene Taylor
Organizer
Fredericksburg, VA
Madeline Jackson
Beneficiary