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Support Levi's Journey to Infinity Clinic

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Hi friends,

We’re raising funds to send our 14-year-old son, Levi, to Infinity Neuromotor Clinic in Minnesota for a two-week therapy intensive. The funds will cover both the cost of treatment and travel expenses for Levi and my wife Michelle. Any additional funding will go towards the purchase of therapy tools.

Levi is an incredible kid—curious, determined, and full of personality. He also lives with a variety of developmental disabilities that affect him physically, behaviorally, and in his ability to speak and communicate. His journey has been full of challenges, but also full of progress. He’s learned to do things we were once told he might never do, and we continue to believe in his capacity to grow.

Part of what makes planning for Levi’s care so complex is that he has a rare genetic condition, one that’s still not well understood. Because there’s no established treatment path for children like Levi, we’ve had to look for thoughtful, creative, individualized approaches—like the one offered at Infinity.

Earlier this year, Levi and Michelle spent a week at Infinity. We met the doctors and therapists, experienced their approach, and saw the care and thoughtfulness behind their work. This next trip will give Levi an opportunity to go deeper into the therapy process, using techniques and tools that are uniquely suited to his needs.

Without getting too technical, let us explain part of what’s going on with Levi developmentally:

When babies grow, they’re supposed to “outgrow” certain automatic movements called primitive reflexes—early building blocks for movement, focus, and regulation. In Levi’s case, many of these reflexes never fully faded, making everyday things like swimming, biking, staying focused, or calming down much harder than they should be.

This clinic specializes in helping kids like Levi by gently guiding the brain and body to “re-integrate” these reflexes, giving him a second chance to build the foundation he missed.

Levi will be assessed at the start and end of the program to measure progress, and he’ll receive tools and support to help regulate his energy and thrive through long therapy days.

This kind of care is intensive, highly personalized, and a real chance for Levi to move past the challenges he’s faced.

In addition to supporting Levi’s continued development, this intensive will help us as parents better understand how to care for him moving forward. We’ll come home with a clearer plan for what types of therapies to pursue, how to structure ongoing support, and how to advocate for the services he needs.

As a note, we don’t always share the details of Levi’s medical history publicly. It’s personal, and he deserves dignity and privacy. But we’re opening up a bit more here because we believe this next step matters, and we know many of you care and want to support him however you can. Always feel free to reach out to us directly with specific questions.

Whether you’re able to give financially, share this with others, or keep Levi in your thoughts and prayers—thank you. We truly can’t do this alone, and we’re so grateful that we don’t have to.

With love and gratitude,

Brett and Michelle
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    Organizer

    Brett Madron
    Organizer
    Lakewood, TN

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