Support Leon living with Duchenne Muscular Dystrophy

Our son Leon was diagnosed at 6 years old with Duchenne Muscular Dystrophy.

Duchenne is a rare and fatal progressive muscle wasting condition for which there is currently no cure. Leon struggles to keep up with his friends, falls frequently, becomes easily fatigued and uses a wheelchair for longer distances. Leon will lose the ability to walk and will require use of a power wheelchair.

The average life expectancy is around mid twenties but with more understanding and research the life expectancy is increasing.

The main task we are facing is to get our house suitable for Leon so he can move safely and freely around our home. There are many adaptations that are required to the current layout of the house. These changes are vital. An extension will mean Leon can have his own accessible ground floor bedroom with wet room and also a living space for the whole family.

Leon will need a ceiling track hoist, level access shower, accessible toilet, an adjustable bed, storage for medical equipment and more!

We will get some support from our local council with this, but unfortunately it will fall far short of the whole cost. It's essential these adaptations are in place before Leon can no longer use the stairs.

The money raised will ensure Leon can be independent and comfortable in his own home during the later stages of Duchenne.

Thank you for taking the time to read our story!

Liam and Michelle